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What is the probability that my Pilonidal Cyst will reoccur?

By Anonymous June 30, 2010 - 6:13pm
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I am a 20 year old woman. I am not overweight. I am not hairy. And there was no trauma to my tailbone. Somehow, however I developed a pilonidal cyst. All of the reasons that they have for people to develop this kind of cyst I do not seem to have. I have reasons to believe that my case may be one of the rare cases where it is congenital. I did have a dimple, but it never bothered me, and I don't remember ever being without it. I am very worried that it could become inflamed again. When I went to the doctor, they administered me some numbing agent around the tailbone, and then drained the cyst with a needle. No gauze was used, or stitching, or extraction. Doesn't this leave room for this to happen by a greater percentage?

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EmpowHER Guest

My cyst is not pilonidal because it is on my lower right back and it's hairless. My dermatologist told me to use hot compresses to drain it, which worked. I am very sensitive to hormonal fluctuations; I don't think that it's a coincidence that my cyst grew biggest (about the size of a pingpong ball) when I was estrogen-dominant aka progesterone-deficient. It (and the depression that came at the same time) didn't recur after I started on bioidentical progesterone until perimenopause when I was estrogen-dominant again. I haven't had a cyst since I've balanced my hormones post-menopause. Our highly chemicalized world exposes us to high levels of estrogen. Bioidenticals can create balance (after trial and error to figure out doses) and are available from a compounding pharmacist. CBW

July 5, 2016 - 9:36am
EmpowHER Guest

I am a 19 year old female and five months ago I developed a large pilonidal cyst below my tail bone. I wasn't aware of what it actually was until I started to faint (from the unbearable pain). I thought it could be fixed with some antibiotics and baths etc. As you see on Google.
After multiple fainting episodes, I was taken to the ER and one of the nurses said I needed to have surgery ASAP as it the cyst was highly infected. They made an incision and removed the contents and it took 2 months to heal from the bottom up. That healing method allows the wound to have a LOWER chance of infection, as I was told. Anyways, my recovering went quick and less painful than it was when I had the cyst. 3 months on from surgery and I am experiencing the uncomfort of a cyst in the same area. There is redness and I can feel a small marble sized lump underneath my scar. I am going to my GP tomorrow to get a referral to see my surgeon. I really hope this is a one off. I do not want to experience this pain again. Better to get onto it quickly! Surgery was worth it, but the recovery time is costly.

June 7, 2016 - 2:30am
EmpowHER Guest
Anonymous (reply to Anonymous)

Did you go see your doctor? I am 4 months after my surgery to remove my 2nd pilonidal abcess within 3 months ( Christmas then in April when I got the op) and I am now feeling discomfort and what your experiencing. When I got my op it was also an emergency as I was In excruciating pain that when I took a bath to help I had to get my boyfriend to lift me out because it was so sore :( I to am hoping it isn't coming back.

August 22, 2016 - 3:57pm
EmpowHER Guest

I had a surgery to remove my pilonidal cyst when I was 17. The doctor stitched it up rather than packing it and leaving it open, and I used silver nitrate on it and was told to use nair on my butt forevermore. I decided not to do that because it's way too much work and it really hurts on an open wound. Which has been reoccurring for 6 years, because I am now 23. I think my cyst was caused by trauma and being hairier than average (which I'm very self conscious about). Anyway, a hole will open up after being healed for a few months that drains blood and puss even though I don't have another cyst. (or I might have a cyst but there's no bump on my rump like there was last time?) I've just been sticking toilet paper in my cleft for years rather than going to the doctor and talking options like skin grafts or another surgery because it's so embarrassing and I'm hairy and it's my butt like come on it's just awkward. But I think I've built up the courage to get it checked out because I've just been ignoring it for years which is pretty ridiculous. Anyway, it's weird the things we'll put up with because of inconvenience and embarrassment.

March 28, 2016 - 12:43am
EmpowHER Guest

I am 18 years old and I had the cyst on my tailbone when I was 17! I had it for a week before I went to the doctors. When I went they told me I need surgery ! Which scared me and I had to miss my senior year of softball ! After the surgery they told me the infection was deeper then they thought and left a very big hole in that area ! It was 11 inch whole which lead me having to use a vac! I couldn't move walk lay right etc it was rough I hated everything I was out of school for four weeks and on the vac for 55 days ! Even after the vac I had to pack it and everything ! Ten months later after packing it everyday and everything I went through its all heal up !

February 20, 2016 - 7:57am

So great to see other women have had a pilonidal cyst. Most of what you read about them says they occur in hairy, dirty men so the first time it occurred, it made me feel like a dirty freak.
I got my first pilonidal cyst when i was about 13 years old. it was treated with antibiotics and lasted about 2 weeks. At that time i was advised by a surgeon that even after surgery, the cyst can reoccur.
After about 20 years, the cyst randomly reoccurred again, and was treated with antibiotics and I again, i was advised to avoid surgery.
I am now 51 years old and since becoming menopausal I have had 3 pilonidal cysts in the past year.
They are so incredibly painful.
Currently on another round of antibiotics right now.
My reason for commenting is; I am thin, very active and not particularly hairy.
Once a female experiences the pain of 1 pilonidal cyst, we will take extreme measures to keep that area clean.
I dont know what causes them to occur but in my case, it is not from bad hygiene, sitting too much, or being over weight.
Hang in there ladies, the epsom salt soaks and antibiotics do wonders.
A google image search will be enough to make you want to avoid surgery and the 6 month recovery time.
Good luck ladies .

December 9, 2015 - 10:24pm
EmpowHER Guest
Anonymous (reply to MartinaM)

Um, no need to be overly feminist and say it's a dirty hairy man disease. I am 29 and just developed my first out of the blue. I think I've always had two sinus small hole in my cleft but I never gave them a thought. And at 6'1, 190lbs I am not overweight. I regularly run 20 miles a week because I don't like lifting weights much or going to a gym. I've noticed my tailbone becoming sore in the past sometimes if I did sit ups. That's about it.
And now in a 6 month span, I've had this occur twice. And a month after my last occurrence, I can almost feel this building up again. It's terrible.
And FYI, antibiotics don't do anything for this unless the abcess is leaking. Antibiotics don't penetrate cystian walls. Visit pilonidal.org for better info

February 15, 2016 - 11:10pm
EmpowHER Guest
Anonymous (reply to Anonymous)

THANK YOU. I myself a man and have had this occur twice. Moderately hairy but definitely not dirty, a bit obsessed with cleanliness actually and I still had it.

I am wondering though, my doctor told me that he had completely removed the cyst(which this was years ago) and implied it would never return, however I have been noticing light pain and tenderness from that area recently and am a bit concerned. I've had it excised twice and then the surgery for "complete removal" and yet here I am years later with the area feeling sensitive..

Does anyone have any definitive knowledge about this? Can it reoccur after removal? And what would be symptoms of a cur and is there any way to stop it after having symptoms? Thank You!

June 16, 2016 - 10:17am
EmpowHER Guest

Back in 1972 I was 17 years old, an active average weight teenaged girl in high school. I slipped on a throw rug and broke my coccyx (tailbone) and had to use a donut cushion for several weeks to prevent pain and allow the bone to heal. After a bit, one day I sat down on a bus with contoured seats and leaped up because of awful pain. I felt a large swelling, the size of 1/2 grapefruit, near the base of my spine. My dad, an MD, took one look at it and diagnosed pilonidal abscess. The very next day I had surgery to drain the infection, excise the inflamed damaged tissue and remove the debris inside the cyst. The surgeon explained that it was a congenital defect that was nursed when I fell, and that the dimple that I had always had at the base of my spine was the indication that I had the cyst. My mother told me that she had always wondered about that dimple, as she never saw another baby with one. Once the surgery was completed, My dad would take out the packing daily, clean it out with peroxide and then cauterize the wound with silver nitrate before repacking it wth gauze. Very very painful, and this lasted for 6 weeks. Also took 3 weeks of oral antibiotics. The good news is that it never reoccurred and that was 43 years ago. In no way was my cyst the result of obesity, lots of body hair or bad hygiene.

October 26, 2015 - 8:19pm
EmpowHER Guest

I am 34 and have been afflicted with this cyst since it revelaed itself in 2011 while i was traveling for work. I thought i had some unusual pressure on my tailbone from sleeping for months in hotel beds. The first time it drained on its own, i had no clue what was happening, just some funky gunk on my hand when i wiped. After that first time, it was coming about every 6 weeks. I have found a manageable treatment for myself because I REFUSE to have a surgery that will cut open my back and leave it open and not even have a 50% chance that it would prevent the cyst from returning. I have some lovely tattoos back there too that id rather not cut off.
My husband is Jamaican and he gave me a fruit that is supposed to kill off cancer cells and infection when i first started to feel it coming. The next day, it was less and the folowwing day, it went back down. Never had to drain it, and it stopped hurting. I have since found the fruit in the States and also tea from its leaves and i blend it in smoothies, drink juice, ajd make hot tea with it. Its called Soursop in the Carribbean, and Guanabana in Latin countries. This fruit and the occasional Epson salt bath is what has kept me out of the hospital. I load up on extra when i feel it starting to surface and a day or two later, its gone akd doesnt come back for months when i keep soursop in my diet. Try some by looking in the freezer section of your local international market!!

July 13, 2015 - 4:35pm
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