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What is the probability that my Pilonidal Cyst will reoccur?

By Anonymous June 30, 2010 - 6:13pm
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I am a 20 year old woman. I am not overweight. I am not hairy. And there was no trauma to my tailbone. Somehow, however I developed a pilonidal cyst. All of the reasons that they have for people to develop this kind of cyst I do not seem to have. I have reasons to believe that my case may be one of the rare cases where it is congenital. I did have a dimple, but it never bothered me, and I don't remember ever being without it. I am very worried that it could become inflamed again. When I went to the doctor, they administered me some numbing agent around the tailbone, and then drained the cyst with a needle. No gauze was used, or stitching, or extraction. Doesn't this leave room for this to happen by a greater percentage?

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I had a surgery to remove my pilonidal cyst when I was 17. The doctor stitched it up rather than packing it and leaving it open, and I used silver nitrate on it and was told to use nair on my butt forevermore. I decided not to do that because it's way too much work and it really hurts on an open wound. Which has been reoccurring for 6 years, because I am now 23. I think my cyst was caused by trauma and being hairier than average (which I'm very self conscious about). Anyway, a hole will open up after being healed for a few months that drains blood and puss even though I don't have another cyst. (or I might have a cyst but there's no bump on my rump like there was last time?) I've just been sticking toilet paper in my cleft for years rather than going to the doctor and talking options like skin grafts or another surgery because it's so embarrassing and I'm hairy and it's my butt like come on it's just awkward. But I think I've built up the courage to get it checked out because I've just been ignoring it for years which is pretty ridiculous. Anyway, it's weird the things we'll put up with because of inconvenience and embarrassment.

March 28, 2016 - 12:43am
EmpowHER Guest

I am 18 years old and I had the cyst on my tailbone when I was 17! I had it for a week before I went to the doctors. When I went they told me I need surgery ! Which scared me and I had to miss my senior year of softball ! After the surgery they told me the infection was deeper then they thought and left a very big hole in that area ! It was 11 inch whole which lead me having to use a vac! I couldn't move walk lay right etc it was rough I hated everything I was out of school for four weeks and on the vac for 55 days ! Even after the vac I had to pack it and everything ! Ten months later after packing it everyday and everything I went through its all heal up !

February 20, 2016 - 7:57am

So great to see other women have had a pilonidal cyst. Most of what you read about them says they occur in hairy, dirty men so the first time it occurred, it made me feel like a dirty freak.
I got my first pilonidal cyst when i was about 13 years old. it was treated with antibiotics and lasted about 2 weeks. At that time i was advised by a surgeon that even after surgery, the cyst can reoccur.
After about 20 years, the cyst randomly reoccurred again, and was treated with antibiotics and I again, i was advised to avoid surgery.
I am now 51 years old and since becoming menopausal I have had 3 pilonidal cysts in the past year.
They are so incredibly painful.
Currently on another round of antibiotics right now.
My reason for commenting is; I am thin, very active and not particularly hairy.
Once a female experiences the pain of 1 pilonidal cyst, we will take extreme measures to keep that area clean.
I dont know what causes them to occur but in my case, it is not from bad hygiene, sitting too much, or being over weight.
Hang in there ladies, the epsom salt soaks and antibiotics do wonders.
A google image search will be enough to make you want to avoid surgery and the 6 month recovery time.
Good luck ladies .

December 9, 2015 - 10:24pm
EmpowHER Guest
Anonymous (reply to MartinaM)

Um, no need to be overly feminist and say it's a dirty hairy man disease. I am 29 and just developed my first out of the blue. I think I've always had two sinus small hole in my cleft but I never gave them a thought. And at 6'1, 190lbs I am not overweight. I regularly run 20 miles a week because I don't like lifting weights much or going to a gym. I've noticed my tailbone becoming sore in the past sometimes if I did sit ups. That's about it.
And now in a 6 month span, I've had this occur twice. And a month after my last occurrence, I can almost feel this building up again. It's terrible.
And FYI, antibiotics don't do anything for this unless the abcess is leaking. Antibiotics don't penetrate cystian walls. Visit pilonidal.org for better info

February 15, 2016 - 11:10pm
EmpowHER Guest

Back in 1972 I was 17 years old, an active average weight teenaged girl in high school. I slipped on a throw rug and broke my coccyx (tailbone) and had to use a donut cushion for several weeks to prevent pain and allow the bone to heal. After a bit, one day I sat down on a bus with contoured seats and leaped up because of awful pain. I felt a large swelling, the size of 1/2 grapefruit, near the base of my spine. My dad, an MD, took one look at it and diagnosed pilonidal abscess. The very next day I had surgery to drain the infection, excise the inflamed damaged tissue and remove the debris inside the cyst. The surgeon explained that it was a congenital defect that was nursed when I fell, and that the dimple that I had always had at the base of my spine was the indication that I had the cyst. My mother told me that she had always wondered about that dimple, as she never saw another baby with one. Once the surgery was completed, My dad would take out the packing daily, clean it out with peroxide and then cauterize the wound with silver nitrate before repacking it wth gauze. Very very painful, and this lasted for 6 weeks. Also took 3 weeks of oral antibiotics. The good news is that it never reoccurred and that was 43 years ago. In no way was my cyst the result of obesity, lots of body hair or bad hygiene.

October 26, 2015 - 8:19pm
EmpowHER Guest

I am 34 and have been afflicted with this cyst since it revelaed itself in 2011 while i was traveling for work. I thought i had some unusual pressure on my tailbone from sleeping for months in hotel beds. The first time it drained on its own, i had no clue what was happening, just some funky gunk on my hand when i wiped. After that first time, it was coming about every 6 weeks. I have found a manageable treatment for myself because I REFUSE to have a surgery that will cut open my back and leave it open and not even have a 50% chance that it would prevent the cyst from returning. I have some lovely tattoos back there too that id rather not cut off.
My husband is Jamaican and he gave me a fruit that is supposed to kill off cancer cells and infection when i first started to feel it coming. The next day, it was less and the folowwing day, it went back down. Never had to drain it, and it stopped hurting. I have since found the fruit in the States and also tea from its leaves and i blend it in smoothies, drink juice, ajd make hot tea with it. Its called Soursop in the Carribbean, and Guanabana in Latin countries. This fruit and the occasional Epson salt bath is what has kept me out of the hospital. I load up on extra when i feel it starting to surface and a day or two later, its gone akd doesnt come back for months when i keep soursop in my diet. Try some by looking in the freezer section of your local international market!!

July 13, 2015 - 4:35pm
EmpowHER Guest

I have had a cyst for 20 years. It busted when I was 14 after horseback riding. Have had scoliosis and other back problems Since teenage years. It has only abscessed/drained once so far. No surgery. Daily cleaning and healed up on its own. It has been bothering me a lot lately. I am wondering if mine was congenital since I am also a woman, not hairy. I am considered overweight and was obese when this happened. However, I don't see how an infected hair follicle could last for 20 years without more draining abscesses. Surgical consult at the time just said conservative treatment first. Which was done. Have had pain off and on over the years especially during menstrual cycle. You can feel it at the base of my tail bone a lump the size of a ping pong ball

June 4, 2015 - 8:18am
EmpowHER Guest

hello, I'm a 16 year old female that is average weight and not extremely hairy. when I was about 14 I would get this painful reoccurring bump on my tailbone that would last for about a week. Up until last year when I was 15, it got infected due to the fact I hurt my knee, so in class I had to sit a certain way that applied pressure to my tailbone. Due to this, the cyst reoccurred and became infected. I had no idea what it was until my mom looked it up and finally took me to the doctor. They gave me antibiotics that I took for about a week or a month(I don't really remember) and would apply a heat pack to it several times throughout the day. It eventually started to drain a little bit. It wasnt like white puss and didn't smell bad at all thankfully. It was like a clear liquid because it wasn't infected to that extent. I haven't had a cyst ever since. Up until now. It's starting to come back again and I think it might be coming infected again. I go to school for 8 hours and am constantly sitting. And then I come home and sit and do my homework. I just don't know what to do and I really wish I didn't have this. Before I know what it was, I just thought the dimple was a normal thing everyone had. I always keep it clean as possible. Also when I wear thongs, the cyst seems to reappear and hurt even more. I have really bad posture, so I'm forced to sit in a way that applies pressure to my tailbone. I really don't want the surgery I just want it to go away.

April 8, 2015 - 10:24pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Everyone that has this horrible thing take the step to have it removed by surgery, I born with that thing, I hate it for years, if you think it will go away you wrong, mine comes ever year, I'm so happy that I took the surgery, the recovery is long but now I can sit all I want, workout, even getting stress was causing it, get the surgery, is the best option!!!

November 7, 2015 - 9:25pm
EmpowHER Guest

I'm 16 last April i feel and the next week i slowly got more and more pain on my butt and would just burst into tears and couldn't sit or lay down. I then had a fever and started throwing up. The next morning after a long and painful night and car ride i went to the er. The said i had a major abcess infection and would definitely need surgery. weeks after my surgery i i had a HUGE open wound. It was 7 inches long and 8 inches deep. I had to have it packed with everyday. Now one year later i still have an open wound. It is MUCH smaller onlyllike 1.5 inches deep and still pretty long. The skin around it is breaking down and deteriorating. I'm having a wound vac put back on. I had one on before but it was taking off two soon. I'm terrified its gonna come back. Mine was odd because i didn't have a cyst on my butt on the inside like some people do. It popped while i was at the hospital it was disgusting. The doctors said the infectio
n was really bad and had been there for a while and that me falling r

April 13, 2013 - 12:22am
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