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What is the probability that my Pilonidal Cyst will reoccur?

By Anonymous June 30, 2010 - 6:13pm
 
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I am a 20 year old woman. I am not overweight. I am not hairy. And there was no trauma to my tailbone. Somehow, however I developed a pilonidal cyst. All of the reasons that they have for people to develop this kind of cyst I do not seem to have. I have reasons to believe that my case may be one of the rare cases where it is congenital. I did have a dimple, but it never bothered me, and I don't remember ever being without it. I am very worried that it could become inflamed again. When I went to the doctor, they administered me some numbing agent around the tailbone, and then drained the cyst with a needle. No gauze was used, or stitching, or extraction. Doesn't this leave room for this to happen by a greater percentage?

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Anonymous

Hi evanyone. I just got my first pilonidal cyst maybe Thursday of last week. At that point on Thursday I didn't really know what it was until Saturday, when it began to flare up. Monday it was really bad to the point where I couldn't sleep. I woke up at 5:30 am in pain. I ended up heating up a wet towel and putting it inside a zip lock. I put it in a pillow case and then pressed it across my cyst for a while. I had farted under the covers and thought that's what I smelled when I pulled them up, But it was really the cyst that had been draining. So it drained for Monday (all of it really) and no draining today. But sitting down today, I'm starting to feel the pain again. I'm worried I'll have to deal with this for a long time to come:( I'm a college student with no insurance so surgery is out of the question. And would it even matter if the problem keeps coming back? Like I see people on here who said they've had 5 surgeries... I mean I don't want to pay for all that and the problem isn't helping itself. So I guess I'll just be doing hot compresses until it drains completely, I'm hoping. I've felt a dimple between my butt below my crack since forever, but it's never flared up until now. I think I'll start documenting this.

August 1, 2017 - 9:21pm
EmpowHER Guest
Anonymous

im a 28yo male i had a pilonidal sinus for a while before i mustered up the courage to tackle the excision surgery. That was almost a month ago, now im told its almost fully closed, i had to get the wound packed for 3 weeks, daily. it was left open not sewn shut so it took me 2 weeks of painkillers and packing gauze.

now that the surgery is over and im well into a full recovery i am beginning to wonder how likely is it going to reoccur in the same location (top left of my buttocks). im able to sit comfortably now that the swollen skin at the top of my butt crack is gone.

July 18, 2017 - 7:29am
EmpowHER Guest
Anonymous

Hey there! Glad to see I'm not alone lol. I'm a 23 y/o female and I found the complete surgery to be more successful than just lancing. At 13, Back in 2007, a hard fall from a bike onto my tailbone resulted in an extremely painful PC due to the inflammation causing a pocket to form around a hair folicile. I had it lanced and drained, with the hole left open, & packing gauze in the hole which had tunneled down to my tailbone (had to be changed nightly for two weeks.) Two years later it was back, and I had it lanced & drained again. Two more years later it was back AGAIN which pushed my parents and doctors to getting me a cystectomy. This was stitched up. It's now 2017, and I'm still cyst free!!!! For those suffering from a reoccurring pilonidal cyst, I say go on ahead and ask for a cystectomy. It removes the tissue pocket that keeps getting infected & is a relatively quick outpatient procedure. It's not worth the pain/hassle of having to be drained multiple times!

July 3, 2017 - 12:54am
EmpowHER Guest
Anonymous

I am a 16 soon to be 17 year old female and I had a Pilonidal cyst last summer. They lanced it, and drained it, but I had a hole by my tail bone for two weeks and we had to change the gauze 3 times a day until it healed. Now, it is the summer of 2017, and I started to have pain back there again. I thought maybe it was ghost pains from my original cyst, but now I'm having thoughts that I got another one. Oh, the joy.

June 18, 2017 - 9:44pm
EmpowHER Guest
Anonymous

I'm a 20 years old had surgery for a pilonidal abscess about 4-5 months ago, open wound left with packing gauze 2 times a week or so, the surgeon told me the chances of getting it again are likely due to how deep it was (yay) now skip to today and I am lying on my belly typing this in a fair bit of pain, there is no visible lump and I can't really feel a lump although the area is red and tender to touch. Deciding on weather to go straight to the hospital or going to the gp but I have a feeling the go will just put me on antibiotics that won't do anything to help. Ahh the joys of a pilonidal abscess. :(

June 3, 2017 - 5:19am
EmpowHER Guest
Anonymous

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I'm a 33 yr old female with pilonidal cyst. I first noticed it a couple of years ago when I would get severe pain under my tail bone and then feel relief after the pus and blood would discharge. After that, everything would go back to normal until it would occur again. This would happen every few months for a few years. In between I got it checked by a doc who told me I need to surgically remove it. I didn't take him seriously at that time thinking surgery for such a small thing.. And I just ignored it. 3 months ago, it became really bad where I couldn't bend, sleep or function.. I had to finally get the surgery done.. Because a big size was taken out, I got Seroma filled in that area which was even more painful than the surgery and I had to keep going to the hosp to get it drained. Unfortunately, since the time of the surgery, the last 3 stitches never healed. My doc tried silver nitrate (Omg pain), but it didn't work.. There was continuous discharge of pus and blood. My doc kept saying it'll heal but it's been 3 months now and it's not stopped. My doc gave up on me and referred me to a plastic surgeon who suggested a flap.. I wasnt comfortable with that and consulted another surgeon.. She got an ultra sound done for me where it confirmed that its a reoccurance and I'll have to do the surgery again. She said she'll keep the wound open and keep a suction in the surgery area to suck up the area. I don't know if i should actually go for another surgery or just stay on this way.. Coz after reading everyone's stories of multiple surgeries, it just seems that whatever you do, this keeps coming back... FYI, they do say it happens because of being hairy and overweight and I'm neither and most of the stories I've read are similar to me...

May 28, 2017 - 9:48pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I have undergone 1st surgery and whee the cyst reappeared and the reason was stitches. For Pilonidal Sinus, you need to have open wound healing where the wound will heal by itself.
I had my second surgery and it's been 4 years now and i didn't have any problem (didnt reappear).

June 20, 2017 - 2:53am
EmpowHER Guest
Anonymous (reply to Anonymous)

I was 17 when I had my pilonidal cyst removed. Previous to having, i had several falls on my tailbone in which they figured caused the trauma. When it was removed, it was almost the size of a golf ball. Let me say, it was very painful before, during and after surgery, not to mention embarrassing, especially when I had to carry a donut pillow everywhere i went for 2 weeks, as a senior in high school. I am now 36 years old and have not had any troubles since, besides the 2 stiches that grew skin around it and created a small pocket at the top of my crack.

June 3, 2017 - 8:10pm
EmpowHER Guest
Anonymous

I'm a 33 yr old female with pilonidal cyst. I first noticed it a couple of years ago when I would get severe pain under my tail bone and then something would burst inside and pus and blood would ooze out. After that, everything would go back to normal until it would occur again. This would happen every few months for a few years. In between I got it checked by a doc who told me I need to surgically remove it. I didn't take him seriously at that time thinking surgery for such a small thing.. And I just ignored it. 3 months ago, it became really bad where I couldn't bend, sleep or function.. I had to finally get the surgery done.. Because a big size was taken out, I got Seroma filled in that area which was even more painful than the surgery and I had to keep going to the hosp to get it drained. Unfortunately, since the time of the surgery, the last 3 stitches never healed. My doc tried silver nitrate (Omg pain), but it didn't work.. There was continuous discharge of pus and blood. My doc kept saying it'll heal but it's been 3 months now and it's not stopped. My doc gave up on me and referred me to a plastic surgeon who suggested a flap.. I wasnt comfortable with that and consulted another surgeon.. She got an ultra sound done for me where it confirmed that its a reoccurance and I'll have to do the surgery again. She said she'll keep the wound open and keep a suction in the surgery area to suck up the area. I don't know if i should actually go for another surgery or just stay on this way.. Coz after reading everyone's stories of multiple surgeries, it just seems that whatever you do, this keeps coming back... FYI, they do say it happens because of being hairy and overweight and I'm neither and most of the stories I've read are similar to me...

May 12, 2017 - 6:29pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Mine was reoccurring and my doc finally used a wound vac to ensure infection gone
I have a 'tail' of all scar tissue which causes minor pain at times but haven't had another abcsess in 10 yrs

May 28, 2017 - 5:15pm
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