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ask: What is the probability that my Pilonidal Cyst will reoccur?

By Anonymous
 
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I am a 20 year old woman. I am not overweight. I am not hairy. And there was no trauma to my tailbone. Somehow, however I developed a pilonidal cyst. All of the reasons that they have for people to develop this kind of cyst I do not seem to have. I have reasons to believe that my case may be one of the rare cases where it is congenital. I did have a dimple, but it never bothered me, and I don't remember ever being without it. I am very worried that it could become inflamed again. When I went to the doctor, they administered me some numbing agent around the tailbone, and then drained the cyst with a needle. No gauze was used, or stitching, or extraction. Doesn't this leave room for this to happen by a greater percentage?

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Anonymous

I am 34 and have been afflicted with this cyst since it revelaed itself in 2011 while i was traveling for work. I thought i had some unusual pressure on my tailbone from sleeping for months in hotel beds. The first time it drained on its own, i had no clue what was happening, just some funky gunk on my hand when i wiped. After that first time, it was coming about every 6 weeks. I have found a manageable treatment for myself because I REFUSE to have a surgery that will cut open my back and leave it open and not even have a 50% chance that it would prevent the cyst from returning. I have some lovely tattoos back there too that id rather not cut off.
My husband is Jamaican and he gave me a fruit that is supposed to kill off cancer cells and infection when i first started to feel it coming. The next day, it was less and the folowwing day, it went back down. Never had to drain it, and it stopped hurting. I have since found the fruit in the States and also tea from its leaves and i blend it in smoothies, drink juice, ajd make hot tea with it. Its called Soursop in the Carribbean, and Guanabana in Latin countries. This fruit and the occasional Epson salt bath is what has kept me out of the hospital. I load up on extra when i feel it starting to surface and a day or two later, its gone akd doesnt come back for months when i keep soursop in my diet. Try some by looking in the freezer section of your local international market!!

July 13, 2015 - 4:35pm
EmpowHER Guest
Anonymous

I have had a cyst for 20 years. It busted when I was 14 after horseback riding. Have had scoliosis and other back problems Since teenage years. It has only abscessed/drained once so far. No surgery. Daily cleaning and healed up on its own. It has been bothering me a lot lately. I am wondering if mine was congenital since I am also a woman, not hairy. I am considered overweight and was obese when this happened. However, I don't see how an infected hair follicle could last for 20 years without more draining abscesses. Surgical consult at the time just said conservative treatment first. Which was done. Have had pain off and on over the years especially during menstrual cycle. You can feel it at the base of my tail bone a lump the size of a ping pong ball

June 4, 2015 - 8:18am
EmpowHER Guest
Anonymous

hello, I'm a 16 year old female that is average weight and not extremely hairy. when I was about 14 I would get this painful reoccurring bump on my tailbone that would last for about a week. Up until last year when I was 15, it got infected due to the fact I hurt my knee, so in class I had to sit a certain way that applied pressure to my tailbone. Due to this, the cyst reoccurred and became infected. I had no idea what it was until my mom looked it up and finally took me to the doctor. They gave me antibiotics that I took for about a week or a month(I don't really remember) and would apply a heat pack to it several times throughout the day. It eventually started to drain a little bit. It wasnt like white puss and didn't smell bad at all thankfully. It was like a clear liquid because it wasn't infected to that extent. I haven't had a cyst ever since. Up until now. It's starting to come back again and I think it might be coming infected again. I go to school for 8 hours and am constantly sitting. And then I come home and sit and do my homework. I just don't know what to do and I really wish I didn't have this. Before I know what it was, I just thought the dimple was a normal thing everyone had. I always keep it clean as possible. Also when I wear thongs, the cyst seems to reappear and hurt even more. I have really bad posture, so I'm forced to sit in a way that applies pressure to my tailbone. I really don't want the surgery I just want it to go away.

April 8, 2015 - 10:24pm
EmpowHER Guest
Anonymous

I'm 16 last April i feel and the next week i slowly got more and more pain on my butt and would just burst into tears and couldn't sit or lay down. I then had a fever and started throwing up. The next morning after a long and painful night and car ride i went to the er. The said i had a major abcess infection and would definitely need surgery. weeks after my surgery i i had a HUGE open wound. It was 7 inches long and 8 inches deep. I had to have it packed with everyday. Now one year later i still have an open wound. It is MUCH smaller onlyllike 1.5 inches deep and still pretty long. The skin around it is breaking down and deteriorating. I'm having a wound vac put back on. I had one on before but it was taking off two soon. I'm terrified its gonna come back. Mine was odd because i didn't have a cyst on my butt on the inside like some people do. It popped while i was at the hospital it was disgusting. The doctors said the infectio
n was really bad and had been there for a while and that me falling r

April 13, 2013 - 12:22am
EmpowHER Guest
Anonymous (reply to Anonymous)

Even i had a similar problem and took ksharasuthra treatment in ayurveda now there is no problem at all.

November 13, 2014 - 8:01am
EmpowHER Guest
Anonymous

I just so happened to come to your discussion, I wonder where you are at now? I am a 24 year old woman, not hairy or obese. I had a cyst four years ago that my doctor suggested I have surgery for. I did just that. I have not had any problems since then. My cyst was so bad, I could not put any pressure on that area. I had no idea about pilonidal cysts, I didnt even notice that I had eight little holes on the top of my butt crack! I am really glad I had the surgery. Undergoing the surgery sure out weighs dealing with flare up every few months.

January 25, 2012 - 4:37am
EmpowHER Guest
Anonymous

Im 23yrs old. I am a female. I got my first inflammation at the top of my butt when i was 18. It got so bad that i could barely walk or sit down. I had to sleep on my stomach. For about a week or so I lived in agony. I didnt think to go to the doctor because it was embarrassing. It drained on its own when i was at school! i had no idea what had happen but i went to the doctor and they just said it was an abcest. I looked it up online and found out for myself that i had a pilonidal cyst. Since then i get an inflammation every few months sometimes longer if im lucky. I keep clean, but it usually corrisponds to major stress or my period. I take really hot showers to soften the skin and apply neosporin to the infected area. Within a couple days it pops on its own and i put more neosporin on it and then it goes "dormant" again. i though about the surgury too but if it doesnt work whats the point. I think i'll just keep doing what im doing, it seems to work. I've only told one friend about my condition, I thought i was the only one with this weird butt problem, but we're not alone. I hoped i helped someone out there.

July 28, 2011 - 3:29pm
EmpowHER Guest
Anonymous

I am 24 year old woman and have a very similar story. It is very frustrating going online to find more info. The info you find is that you are generally an overweight, hairy, and a male to develop this. The first drainage I had was in Oct/2010, I had another one within a month of that. Then about 6 months went by and I had no re-occurrences. At the end of March I had to go back for a 3rd time where they drained it and packed it again. Now we are in June and I am have an appointment scheduled for tomorrow to have it drained AGAIN! I would say that it will unfortunatly prob come back. I was told this is a "Condition" that I developed at birth. Like you I am not "obese", or "Hairy". I am worried that this keeps happening. I go to a dept of colorectoral surgery and they do not believe in that actual "Surgery" where the remove the entire thing because in some cases it can come back again ANYWAY. I can't imagine going thru a major surgery and having this thing come back. It is a painful procedure to have it drained. However, it closes within a few weeks, is the size of a penny but maybe an inch deep. I am REALLY hoping this is the last time I have to go thru this, but I am not holding my breath. Good Luck to you.

June 8, 2011 - 8:26am
EmpowHER Guest
Anonymous (reply to Anonymous)

I have had the surgery and I have had the lance and gauze packed in the cyst..... I've gone through both im almost 30 and still fighting this condition. Nothing works and there is no cure.... I'm left with scar after scar and no answers or relief

May 5, 2015 - 5:08pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I agree! Ive had mine lanced and drained more times then i can count and even had the big surgery with the open wound 5 years ago and it started coming back yesterday!

June 6, 2015 - 9:54pm
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