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What is the probability that my Pilonidal Cyst will reoccur?

By Anonymous June 30, 2010 - 6:13pm
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I am a 20 year old woman. I am not overweight. I am not hairy. And there was no trauma to my tailbone. Somehow, however I developed a pilonidal cyst. All of the reasons that they have for people to develop this kind of cyst I do not seem to have. I have reasons to believe that my case may be one of the rare cases where it is congenital. I did have a dimple, but it never bothered me, and I don't remember ever being without it. I am very worried that it could become inflamed again. When I went to the doctor, they administered me some numbing agent around the tailbone, and then drained the cyst with a needle. No gauze was used, or stitching, or extraction. Doesn't this leave room for this to happen by a greater percentage?

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EmpowHER Guest

I also am 23 and I am too not over weight , no trauma to my tailbone and had a demple as well in the top of my butt crack that eventually lead to a pilonidal cyst which was surgically removed . It's been 2 years almost and I just found a small painful bump on the top of my incision. I'm so scared.

February 6, 2017 - 12:17am
HERWriter Guide (reply to Anonymous)

Hello Anon

See your doctor, it may have returned. These cysts don't always occur to heavy people who are hairy although that is often the case.

February 7, 2017 - 2:39pm
EmpowHER Guest

I am a 28 year old female and i have had a pilonidal cyst since i was 18. I have had it lanced 3 times and it continued to come back. I recently had surgery about 8 months ago to have it removed, but i have noticed the same symptoms coming back. Inflammation, redness, and pain in the area at my tailbone. All my doctor is telling me is that the surgery was in a "weird" spot and it will take a long time heal. My dad had the same cyst when he was in his twenties and i believe that it is hereditary. It is very uncommon for a female to have a pilonidal cyst and that maybe i have pilonidal disease. Basically, i believe that i'm going to be dealing with this for the rest of my life. I take Epson salt baths to soothe the pain when it is inflamed, but that only helps so much. There have been reports of, not only hair found, but teeth and bone have been in these cysts. Long periods of sitting doesn't help either. It is a very annoying and painful medical issue that i feel will never go away for some people. Take anti-inflammatory meds (i.e ibuprofen) and that should help, but sometimes you need to cseek medical attention if the pain does not go away after a certain length of time. At that point, another lancing may need to happen.

December 18, 2016 - 1:44pm
HERWriter Guide (reply to Anonymous)

Thanks for sharing your story, Anon.

I'm sorry this is something you're dealing with on an ongoing basis and interesting that your Dad had to deal with this too.

I do hope it ends for you permanently, however - ten years of this is just awful.


December 19, 2016 - 2:16pm
EmpowHER Guest

My cyst is not pilonidal because it is on my lower right back and it's hairless. My dermatologist told me to use hot compresses to drain it, which worked. I am very sensitive to hormonal fluctuations; I don't think that it's a coincidence that my cyst grew biggest (about the size of a pingpong ball) when I was estrogen-dominant aka progesterone-deficient. It (and the depression that came at the same time) didn't recur after I started on bioidentical progesterone until perimenopause when I was estrogen-dominant again. I haven't had a cyst since I've balanced my hormones post-menopause. Our highly chemicalized world exposes us to high levels of estrogen. Bioidenticals can create balance (after trial and error to figure out doses) and are available from a compounding pharmacist. CBW

July 5, 2016 - 9:36am
EmpowHER Guest

I am a 19 year old female and five months ago I developed a large pilonidal cyst below my tail bone. I wasn't aware of what it actually was until I started to faint (from the unbearable pain). I thought it could be fixed with some antibiotics and baths etc. As you see on Google.
After multiple fainting episodes, I was taken to the ER and one of the nurses said I needed to have surgery ASAP as it the cyst was highly infected. They made an incision and removed the contents and it took 2 months to heal from the bottom up. That healing method allows the wound to have a LOWER chance of infection, as I was told. Anyways, my recovering went quick and less painful than it was when I had the cyst. 3 months on from surgery and I am experiencing the uncomfort of a cyst in the same area. There is redness and I can feel a small marble sized lump underneath my scar. I am going to my GP tomorrow to get a referral to see my surgeon. I really hope this is a one off. I do not want to experience this pain again. Better to get onto it quickly! Surgery was worth it, but the recovery time is costly.

June 7, 2016 - 2:30am
EmpowHER Guest
Anonymous (reply to Anonymous)

Did you go see your doctor? I am 4 months after my surgery to remove my 2nd pilonidal abcess within 3 months ( Christmas then in April when I got the op) and I am now feeling discomfort and what your experiencing. When I got my op it was also an emergency as I was In excruciating pain that when I took a bath to help I had to get my boyfriend to lift me out because it was so sore :( I to am hoping it isn't coming back.

August 22, 2016 - 3:57pm
EmpowHER Guest

I had a surgery to remove my pilonidal cyst when I was 17. The doctor stitched it up rather than packing it and leaving it open, and I used silver nitrate on it and was told to use nair on my butt forevermore. I decided not to do that because it's way too much work and it really hurts on an open wound. Which has been reoccurring for 6 years, because I am now 23. I think my cyst was caused by trauma and being hairier than average (which I'm very self conscious about). Anyway, a hole will open up after being healed for a few months that drains blood and puss even though I don't have another cyst. (or I might have a cyst but there's no bump on my rump like there was last time?) I've just been sticking toilet paper in my cleft for years rather than going to the doctor and talking options like skin grafts or another surgery because it's so embarrassing and I'm hairy and it's my butt like come on it's just awkward. But I think I've built up the courage to get it checked out because I've just been ignoring it for years which is pretty ridiculous. Anyway, it's weird the things we'll put up with because of inconvenience and embarrassment.

March 28, 2016 - 12:43am
EmpowHER Guest

I am 18 years old and I had the cyst on my tailbone when I was 17! I had it for a week before I went to the doctors. When I went they told me I need surgery ! Which scared me and I had to miss my senior year of softball ! After the surgery they told me the infection was deeper then they thought and left a very big hole in that area ! It was 11 inch whole which lead me having to use a vac! I couldn't move walk lay right etc it was rough I hated everything I was out of school for four weeks and on the vac for 55 days ! Even after the vac I had to pack it and everything ! Ten months later after packing it everyday and everything I went through its all heal up !

February 20, 2016 - 7:57am

So great to see other women have had a pilonidal cyst. Most of what you read about them says they occur in hairy, dirty men so the first time it occurred, it made me feel like a dirty freak.
I got my first pilonidal cyst when i was about 13 years old. it was treated with antibiotics and lasted about 2 weeks. At that time i was advised by a surgeon that even after surgery, the cyst can reoccur.
After about 20 years, the cyst randomly reoccurred again, and was treated with antibiotics and I again, i was advised to avoid surgery.
I am now 51 years old and since becoming menopausal I have had 3 pilonidal cysts in the past year.
They are so incredibly painful.
Currently on another round of antibiotics right now.
My reason for commenting is; I am thin, very active and not particularly hairy.
Once a female experiences the pain of 1 pilonidal cyst, we will take extreme measures to keep that area clean.
I dont know what causes them to occur but in my case, it is not from bad hygiene, sitting too much, or being over weight.
Hang in there ladies, the epsom salt soaks and antibiotics do wonders.
A google image search will be enough to make you want to avoid surgery and the 6 month recovery time.
Good luck ladies .

December 9, 2015 - 10:24pm
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