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Have you ever been diagnosed with an "invisible disease"?

Have you ever been diagnosed with an "invisible disease"?
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Yes fibro and rsd!! I have learned in my life that my diseases make me a stronger person!

May 16, 2011 - 12:14pm

Yes! I also have EDS. It took me 11 years of active hunting for an answer to what was happening to me and to find a doctor to diagnose me because I looked so normal. Nobody knew how my body was falling apart inside. I was told that doctors were always taught if you have someone with EDS you'll know. Why? Because we come in with chronic debilitating headaches and say, "by the way, I'm flexible." We don't even know that our flexibility is that weird! We trust doctors. They need to be looking for these things.

May 13, 2011 - 7:40pm
EmpowHER Guest
Anonymous

Fibromyalgia is what I was told I had.

March 30, 2011 - 10:11pm

Yes, Chronic Fatigue Syndrome...noone thinks its a real diseaseand that I am just tired and need more sleep..ARRRRG!

March 27, 2011 - 5:39pm

Ehlers-Danlos Syndrome
Connective Tissue does not show in MRIs,CTs&Xrays

March 26, 2011 - 7:22pm
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