Living with an Arachnoid cyst, and now brain sagging and a Chiari Malformation, can sometimes be more than I can bear. But day-by-day I deal. I live with chronic pain, headaches, dizziness, balance problems, vision problems and more. It can be a real test of faith some days. What I lived through in getting a doctor to believe that my cyst was the cause and root of my problems, was nothing short of work. No one wanted to listen or believe. This is a common problem for so many people-doctors not really listening. And because they don't listen, or sometimes believe the patient, it can create more problems. That is what happened to me. The cyst was enough, but when my follow up doctor did not listen to me that something had gone wrong, I developed many new and other medical problems. My shunt had been over-draining for months and caused my brain to sag and caused the chiari. It was his ignorance, and lack of caring that created a whole new world of problems.
After everything I'd been through, I felt that my journey needed to be told. My story needed to be heard. So I wrote a book documenting my journey with my brain cyst. It's called, "It's all in Your Head," and it is going to be published next year. It will be out for pre-sales in the summer and sales...in the fall. I would love to be able to help those that are going through any similar experience. To know that there is a light at the end of the tunnel can be so reassuring for many.
I just wanted to let the followers of this site knowt hat next year my story will finally be told and I will keep everyone updated as it progresses.
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