In 2006 I was diagnosed with Devic's disease. It's very similar to multiple sclerosis except scarring occurs mostly along the spinal cord, and brain involvement is very minimal. During an excacerbation, there's usually tranverse myelitis (extensive spinal cord inflammation) and optic neuritis (squeezing of the optic nerve causing loss of vision). The treatment of choice each time I have a flare up is Solu-Medrol, a corticosteroid given IV in the hospital. I receive large doses, most times for about a week or so, and then I taper off the steroids over a span of a few weeks.
When I got the news, I was also told I'd need hip replacements before the age of 35. I'm now 29.
This, in a nut shell, is my story. I'm new to this site, but so far I've read a lot about a lot of different scenarios and I feel blessed to be able to write about what I'm going through.
I'm now seeking a second opinion from another orthepeadist. I share my story because I hope that another woman feeling alone, or feeling she is the only one in this situation, or a situation like mine, will realize that she isn't.
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