My name is Kim an I am 32yrs. old, I am currently being tested for Cushings Syndrome. I am experiencing all symptoms from weight-gain, buffalo hump, thinning limbs,moon-face, you name it. I am very depressed an spend most of my time at home due to my physical features which kills my self-esteem. Reading similar story's of what I'm going through has help me to better understand what to expect with this syndrome. I many questions, if anyone could help me, I would appreciate the support.
Kim S.
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Mary,
June 8, 2011 - 5:19pmThat you so, much for helping me with the info. I called an got an appt. right away hope they can figure out whats going on. You are my Angel,,,,,,I have severe joint pain in my ankles and wrist is that related to Cushings?
Thank-You,
K.sanchez
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Today I went to PCP and my results from urine was 17, she said it was too low. She doesn't feel like there is anything wrong with me. But, things seem to be getting worst swelling on my right side which really hurts. Headaches, limbs are thinning fast with ugly purple marks.What do I do now??Please help???
April 11, 2011 - 6:32pmThis Comment
BTW, today, April 8, is Cushing's Awareness Day. Please wear your Cushing's ribbons, t-shirts, awareness bracelets or Cushing's colors (blue and yellow) and hand out Robin's wonderful Awareness Cards to get a discussion going with anyone who will listen.
And don't just raise awareness on April 8. Any day is a good day to raise awareness.
April 8, 2011 - 10:56amThis Comment
Hi, Kim - I had Cushing's and pituitary surgery in 1987. There are lots of other people with Cushing's on the message boards at http://cushings.invisionzone.com/index.php
If you're interested in my diagnosis/surgery, it's online at http://www.cushings-help.com/maryos_story.htm
Best of luck to you! If I can help in any way, just let me know!
MaryO
April 8, 2011 - 10:53amThis Comment
Hi Kim,
April 7, 2011 - 4:23pmI can truly understand how you are feeling right now. Though I was not diagnosed with Cushing's syndrome, I was diagnosed with a neuroblastoma that mimicked many of the same symptoms. I appreciated your depression and hesitation to go out in public. An altered self-esteem and lack of control over the changes in your body like weight gain and moon face are something that others try to understand, but really cannot.
Here is the link to the Cushing's Disease page:
https://www.empowher.com/condition/cushings-disease/definition
You may find the information and article helpful. There is a link on that page which gives you the opportunity to create a group. Please take a minute to check it out and return if we can be of any further help.
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