hello my name is mikki
IM 49 yrs old , puertorican whose family history consist of 9 diagnosis of breast cancer.
Four suvivors including myself. I was in the military active and reserve for 11yrs.
when I started getting sick really bad migraines so I thought ended up it was a brain tumor pituitary adenoma. I was getting really sick between living in a shelter and moving into my apt. I settled into my apt send my kids off to school started working . I had a counselor who would visit me and insisted i go to a doctor,
In the mist of this diagnosis my background soldier, domestic violence ran to a shelter the whole time still in uniform going to the reserve and saving my checks no longer homeless medical problems became intense. On standby to go to desert storm thank god i was diagnosis right before had to get out. I learned you can run but you cant run from within it stops you dead in your tracks.
2005 , I was losing so much weight my job though i was on a diet , i went to endocrine for a follow up because the dr. said something is not right. When I went back she had moved to newjersey. A new doctor saw me i said im losing weight ect is it my growth hormone , he said no i dont know what is wrong with you but its not hormonal. WRONG MY PATHOLOGY REPORT TUMOR MADE UP OF ESTROGEN . my body keeps blinking and i have to fight to keep the light on.
Im 45 now and for years i have been going for mammo's cyst three oclock left breast. I had fibrocystic breast . I was set up for biopsy aspiration but the cyst was solid biopsy schedule , the doctor cut at 6 oclock not 3 therefore removing nothing . 2005 the cyst is biopsy again and a 2.5 found in the breast tail.
here we go its Cancer i take off running 2 opinion , 3rd opinion, mri of the breast yeah dcis in both , my life is anything but boring i end up at MEMORIAL SLOAN KETTERING. BIlateralmasectomy, chemo, breast reconstruction to breast implants. Chemo sucks, i thought i look bad with acromegaly that went out the window ,when i look in the mirror no hair , no eyebrows, no eyelashes, i look like potato head without the accessories. Memorial sloan is so caught up in its name the nurses are great , love my plastic surgeon DR.JOSEPH DISA, but when my breast were remove the breast fat in my right breast was just pushed aside and left inside of me. Dr called me the night before do you want to remove both breast are you sure , my response are you kidding i have dcis in both i came to you with mri results , which i had done again, at memorial brought you the biopsy slides everything you need yes both breast. I was never told till 2 years later by my plastic surgeon for him to shedule for liposuction to remove the fat. never had it done there was scheduling conflicts and when i tried my job change insurances. I go to the VA hospital my oncologist send me to they surgeon ,who told me why don't i go from saline to silicone we will give you bigger breast . I explained about the breast fat they say oh no you were probably heavier at one time. We will give you new breast and remove the fat. I was humiliated my response was I don't want bigger breast I don't work on a strip pole.
Im a paranoid patient wondering is it normal for ovarian cyst never to disappear .
To top it of im brac 2 positive and don't trust having them. all my test negative ca125 ect, im menopausal since june no menstral. My primary say they are too small to take out 1.4/1.5 centimeters. I go through headaches , vomiting to the point i black out ,and now take imetrex injections, my chest muscles become very painful with spasms and under my armpits, its like pms really bad , but i dont have breast. Before I was diagnosis my cpk was 700 it went down. but in april 09 it was going back up170. Is there a connection because i couldnt get diagnosis but the cpk was the only abnormal test , and its working its way up again. Should i have my ovarian cyst remove to beat the turning into cancer.
I hope my experience helps someone always keep an updated copy of your medical records, for second opinions, listen to your body if you feel there is something wrong you could be right. If you don't feel comfortable with a doctor change doctors. Do your research just because a hospital is reputable doesn't make it better then your prefered one.
All user-generated information on this site is the opinion of its author only and is not a substitute for medical advice or treatment for any medical conditions. Members and guests are responsible for their own posts and the potential consequences of those posts detailed in our Terms of Service.
Add a Comment35 Comments
Mikki,
Thanks so much for coming back and updating us! You do indeed have a lot going on.
I'm not sure I understand the outcome, however, I understand that they did a biopsy right then, in the thyroid area, but what did they find, exactly? What happens next?
January 11, 2010 - 10:12amThis Comment
THEY WILL CALL ME WITH THE RESULTS , THYROID BLOOD TEST NEGATIVE, NEXT STEP BIOPSY OF THE
January 11, 2010 - 10:55amTHYROID , WAITING FOR THOSE RESULTS. ONCE I HAVE THOSE RESULTS DEPENDING WHAT IT IS THEN]
THEY WILL RESPOND WITH WHATEVER TREATMENT IS NEEDED.
MIKKI
This Comment
OK, that's good to know. I'll be waiting with my fingers crossed for good results, Mikki. Take care until then!
January 12, 2010 - 9:22amThis Comment
THANKS DIANE I WILL LET U KNOW. WILL IT BE REGULAR COFFEE OR VANILLA LATTE DOUBLE SHOT
January 12, 2010 - 9:57amThis Comment
LOL! Triple nonfat mocha if you're buying!
January 13, 2010 - 9:16amThis Comment
IM UPSET I GET THE CALL , DR SAYS ITS NOT CANCER BUT THEY WANT TO DO THE BIOPSY AGAIN NOT ENOUGH SAMPLE , I SAID IM GOING TO MY ONCOLOGIST AND INFORM HIM NO CANCER HE CAN FOLLOW UP. IM NOT DOING IT AGAIN UNLESS ITS THE ENDOCRINE SPECIALIST AND NOT AN INTERN. THE PROCEDURE SENDS ME TO A TWO CUP DOUBLE SHOT VANILLA LATTE AND THE DOCTOR WANTS TO DO IT AGAIN.
January 13, 2010 - 7:12pmMIND YOU PATHOLOGIST IS THERE TO VIEW AND CONFIRM AND I STILL HAVE TO DO IT AGAIN NOPE , NOPE , NOT DOING IT TILL I TALK TO MY ONCOLOGIST.
IM BUYING LOL WOW WEEEEEEEEEEEEE OHHHHHHHHH IM GETTING READY FOR THE BATTLEFIELD. LOL. THEY WILL PROBABLY BLAME THE SITE ON RESIDUAL ACROMEGALY ,WHICH CAUSE BLOOD VESSELS TO SEEP INTO THE MEMBRANE IN MY EYE AND BLEED
CAUSING ME TO LOSE MY CENTRAL VISION BY LASER PROCEDURE. IM A REGULAR CYCLOPS LOL , I WONDER WHEN WILL I MAKE THE TEXT OF DIAGNOSIS LOL.
MIKKI
This Comment
Mikki,
Can you have the doctors send the results to your oncologist so he can see them too? I cannot imagine how frustrated you must be at doing such a procedure and simply having them say they need to do it again.
When will you talk to your oncologist?
Keep after it, girl. You are the best advocate for you, and you are doing an awesome job. I'll buy the latte next time.
January 14, 2010 - 9:12amThis Comment
FEB 3RD THEY ARE ALL IN THE SAME HOSPITAL THE ONCOLOGIST IS THE ONE WHO ORDERED THE ULTRASOUND , HE IS ABLE TO SEE IT ALL ON ELECTRONIC MEDICAL RECORDS, I WANT HIM TO SHOW THE PATHOLOGY RESULT WHAT IS THE GROWTH AND IS IT IN A DANGEROUS LOCATION IF IT CONTINUES TO GROW , IF THE ANSWER IS YES THEN TAKE IT OUT , MY FAVORITE WORD LOL AT THIS RATE WE WILL HAVE A PARTY PACK OF LATTE LOL
January 14, 2010 - 12:25pmThis Comment
Mikki,
You have an amazing attitude. I hope you realize that. In the midst of a medical history that would be a challenge for anyone, you are still working hard for your own health and finding your sense of humor in the middle of it all. I will cross my fingers for the Feb. 3 appointment with your oncologist and hope that you get good news and (at the very least) good information then. Please do come back and let us know.
January 15, 2010 - 9:14amThis Comment
HI DIANE
January 28, 2010 - 5:13pmI WAS IN THE NEUROLOGIST OFFICE YESTERDAY AND HE TOLD ME UR OKAY AS FAR AS UR HEAD LOL
PICK UP YUR MEDICATIONS FOR UR HEADACHES AND GO TO SEE THE ONCOLOGIST TELL HIM U WANT TO SEE THE PETSCANS AND EVERYTHING ESLE.
I DID CHECK IN AT THE PHARMARCY, GO TO ONCOLOGY AND HE SHOWED ME ULTRASOUND , REPORTS,
BUMMER A BLACK SPOT , AND A SMALLER ONE , NO BLOOD FLOW BUT DID NOT HAVE NO DIAGNOSIS NOT ENOUGH CELL BLOCK SPECIMEN. SO BACK TO THE DRAWING BOARD I ASK HIM CAN HE PLEASE EMPHASIZE THAT ONLY THE DR DO THE PROCEDURE CLASS IS OVER. WENT TO THE ENDOCRINE CLINIC SET UP THE APPT , FEB 17 I TOLD THE NURSE NOBODY BUT THE DR SHE AGREED. I WALK HOME ABOUT A MILE IPOD ON GOING IN THE ZONE ALL I WANTED WAS A VANILLA LATTE. LOL
HERE WE GO AGAIN.
IM MORE CONFIDENT READY TO DEAL WITH AND GET IT OVER ,
This Comment