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Arachnoid Cyst Support Group Join this Group

Are there still people current on this site?

By October 19, 2012 - 6:20pm

I am just wondering if there are currently people using this site.

By HERWriter Guide November 11, 2013 - 3:34pm

Hi Joann

Thanks for your post!

What kind of surgery are you planning? A shunt? Depending on how it's done, it can be pretty quick with a fast recovery. Check out one method here: http://www.upmc.com/Services/neurosurgery/brain/treatments/endoscopic-endonasal-approach/Pages/default.aspx

We hope to hear back from you!


November 11, 2013 - 3:34pm
By November 3, 2013 - 12:11am

Hey there I am 55 and have been told i also have a Inferior Posterior Fossa Arachnoid Cyst on my brain stem. well its been causing breathing trouble the last 4 months my primary doctor said the lungs were clear and its just smog.. ( do not think so as i am on pro air inhalers and predison for asthma but even this is not helping along with a nebulizer i am on every few hours each day and nite.. then not sleeping does not help.. but its also effecting my hearing .. i was at the store about 2009 - 2010 at the casher and i could not make out what she was saying the words were really muffled.. strange - but this has happned over the years more and more.. then its the brain fog where you are talking to someone and just drop off.. you have no idea what you are trying to say.
I have had this funky cough that happens when i take a breath in this is not normal.. been like this about 4 months.. its irrating as you go to say something to someone and start coughing but your lungs are still not clear..go figure.. then yes i get that zapping feeling or its like electric shot jabs that hit all over my body some times for days to weeks,, that will keep you awake but least i know where its coming from.. so my neuro doctor is setting me up with a neuro surgen that she knows deals with one of the best in this field so that makes me feel better.. and soon i hope this will be taken care off.. Question how long is someone in the hospital with this surgury thing.. anyone know.. thanks - have had Multiple sclerosis since age 14 diagonse finally this year.. Joann- 2013

November 3, 2013 - 12:11am
By November 10, 2012 - 9:19pm

Is there a conference for this year?

November 10, 2012 - 9:19pm
By October 25, 2012 - 4:14pm

Hello...I'm new to the site but I'm here!

October 25, 2012 - 4:14pm

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This group is for people with arachnoid cysts, and/or their caregivers, to gather and share information to support each other.


This Group is Open to all EmpowHER.com members