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Arachnoid Cyst Support Group Join this Group


By August 19, 2010 - 8:02pm

hi everyone, sometimes its so difficult to get thru the normal moments of the day when my head goes off. its hard to describe so i won't try but i can say that not knowing how yr gonn a feel from one day to the next makes it hard to be spontanous or make plans. i don't know if others feel this way. i do my best to try like today. went out for breakfast with my husband n friends. shortly after arriving the pain, fatigue, fog all began to set in. mostly in the left side of my head. i tried to keep up and not show what i was feeling. my husband then wanted to go look at cars so we did and the whole time i was fading, felt like i was in slow motion at times. my husband caught on to my feeling less than so we headed home. we get precious litttle alone time so despite feeling like crap, i'm glad we went. do others find that the cyst and symptoms affect their day's agendas, plans, dates etc?

By September 6, 2010 - 10:02pm

hi pat, i know you too struggle with good and not so good days. hope these word find you on a good one., thanks for the encouragement. lee

September 6, 2010 - 10:02pm
By HERWriter Guide August 20, 2010 - 4:56pm

I'm sorry you're experiencing this. I hope others will also talk about what they're dealing with, and ways they've found to cope or lessen the symptoms.

August 20, 2010 - 4:56pm

Group Leader


This group is for people with arachnoid cysts, and/or their caregivers, to gather and share information to support each other.


This Group is Open to all EmpowHER.com members