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Cirrhosis, the taboo disease Join this Group

Let's Talk About Cirrhosis

By HERWriter Guide January 22, 2012 - 1:07pm

Thank you to Mary for starting this Group.

Mary, I agree completely that this isn't an issue that's talked about much in terms of living with it, the symptoms, the challenges.

Much of it, in my opinion, is due to to the fact that it's often (though not always) caused by too much alcohol intake over a period of time. But regardless of how one has cirrhosis (and that's not the issue here, no more than lung cancer people should be blamed for smoking or HIV+ people should be blamed for having multiple partners or taking drugs) it is a condition that needs some light placed on it.

If anyone is living with cirrhosis or living with someone who has it, let's talk about the day to day lives and concerns.

We hope to grow this group together!

By HERWriter Guide October 11, 2012 - 7:02am

Hi kattalker

I'm glad you feel better by writing things down. I think that if you keep a daily journal, you might get a great sense of relief.

I think it's normal to feel angry about your situation. You are still relatively young and you have lots of life ahead of you, but you have a damaged liver - a vital organ. This will cause frustration and resentment.

Is there any kind of support group near you - have you looked into this?


October 11, 2012 - 7:02am
By October 10, 2012 - 3:19pm

taboo disease , yes I do feel I cannot talk about this to very many people.
when I was 15, I ran away from home,used some drugs,stopped and had a regular life.(no drugs,did drink alcohol)
At 41 was diagnosed with ovarian cancer got spayed and treated, and learned that I had hep c.
Now I am 61 and got diagnosed with cirrhosis when I was 55, I feel pretty good physically, but now I have these bad mood bouts,is this from the disease?Sometimes it is really bad. I have had treatment for depression ,sure it is not that,just feel angry about everything .
Anyone experiencing the same thing? It felt good to write this down.

October 10, 2012 - 3:19pm

Group Leader

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This is a group I am creating for the support of people like me who, are cirrhosis. I would like to have a place to go to where I can hear from others about the physical, mental and emotional aspects about this illness. I have seen blogs and websites for survivors of so many diseases but, none for cirrhosis it's just not talked about. I feel so alone sometimes, I have a wonderful family and friends as well as my medical team but, I would like to connect with others that truly understand this horrible illness that has such a terrible stigma attached to it. Please feel free to email me and/or join this group.


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