December 31, 2011 - 3:34pm
Hi, I'd like to introduce myself to the group. I had a pituitary tumor removal in April of 2011 and since then everything seems to be a blur. The struggle to get diagnosed and then the rush to have the surgery, on top of the fact that due to the size of the tumor I know have damage to the gland. This has caused secondary adrenal insufficiency and hypothyroidism. The story of finally self-diagnosing Cushing's Disease and getting the tests to prove it is horrible. In fact, I am trying now to sue my doctor for not diagnosing it 5 - 10 years prior. During all of the years before being diagnosed, I was another Cushie being told to take antidepressants, lose weight, I had diabetes, high blood pressure, but the worse was the depression. Right now I am struggling to find some sense of "normal." Everything has changed so much. I am definitely better than I was before, but still feel like a new person. I also have trouble identifying with the life I created for the past 15 years with Cushing's. I hope to meet others who can share strength and hope for life after Cushing's. Thank you.