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Dealing with Polymyositis Join this Group

Hi All!

By HERWriter Guide January 28, 2011 - 9:53am

I'd like to thank Kdupell for starting this group. For those of us unaware of this condition, Polymyositis is a disease in the muscles that usually affects the trunk of the body, although is also seen elsewhere. It's a progressive disease that can cause a lot of pain, and causes the muscles to lose strength.

More can be read on our Polymyositis page here: http://www.empowher.com/condition/polymyositis

Kdupell, I do hope others who are going through the same thing can join in the discussion. In the meantime, can you tell us a little about your life and how polymyositis is affecting you?

I hope to hear back from you soon!

By HERWriter Guide April 12, 2011 - 7:41am

Hi kdupall

Thanks for telling us your story. Have you been told there is any genetic component to your condition? Do you remember hearing about any family members who may have had this?

Also, I'm really glad to know you have family support and were approved for some monthly payments. You are so young to be a bit home bound but I'm sure looking after your grandchild keeps you busy and it's good to have company at home (and a little help!) instead of being alone.

Do you know if there are any support groups near you? This might help too, you should ask your rheumatologist as he/she would probably be a good source for that.

April 12, 2011 - 7:41am
By April 11, 2011 - 4:24pm

My diagnosis came as quite a surprise...after many months of knowing something was wrong and having every test under the sun. I finally got the opportunity to ask for a muscle biopsy when I had to have my gall bladder removed on an emergency basis. Sure enough...there WAS something wrong. This was in July 2010. I discussed the results with my primary care doctor and in September 2010 I started treatment with a Rheumatologist in Philadelphia, Pa.
Therapy with 60mg of prednisone and methotrexate began. I had to be taken off of the methotrexate but the prednisone seemed to be doing the trick by December 2010. At the beginning of 2011 I noticed that things seemed to be getting worse and my symptoms coming back. My daughter and her family moved in with us. I could help her with the baby and she could help me around the house. I have since had to apply for social security disability...luckily I was approved. At 48 I am a stay at home Grandma with limited mobility and much pain. I've found a new rheumatologist and we're working on a hew care plan.

April 11, 2011 - 4:24pm

Group Leader

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I am a 48 year old female diagnosed with polymyositis in August 2010. I'd just like to be here to support and learn from others with the same condition.


Maple Shade, New Jersey


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