August 25, 2012 - 1:09am
Looking for a support network for anyone who has the same problem as me.
So far all I can find is people who have lower abdominal pains or urgency to urinate.
This is not what I'm experiencing, the only way to describe it is for the last 10 months or so:
it feels as though there is a white-hot, double-edged blade being passed in and out of my urethra constantly. I have NO bladder pain or lower abdominal pain, and going to the toilet does not relieve it.
Countless trips to the hospital, screaming in pain, begging for help, urine samples and blood tests, ultrasounds and even a Cystoscopy and Urethroscopy show nothing.
I have been tested for STI's and they were clear, I have one sexual partner, not that sex is even on the cards because I am always in pain.
My urologist has put me on yet another course of low-dose antibiotics, as although my urine shows zero bacteria, there are red and white blood cells and nitrates present. I have also been tested for bladder cancer, all clear.
I've had to put my life on hold, dropping out of University, too scared to go to my job where they don't take to having time off work easily.
I would love for anyone experiencing these type of symptoms to comment, I need to know that I'm not alone :-(