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When can I get off this roller coaster ride!!

By August 25, 2011 - 11:21am

For many of you with thyroid disease, it may start to feel like a roller coaster ride. One day you feel great, the next day you don't. As annoying as this is, it can be quite normal. Until you begin to address this disease for what it is (a BIG pain in the butt for some of us!) and accept the fact that your life may never be the same, you may struggle with it. I was that way, in denial of the effects it was having on my body, during the teenage years I would even go months without taking my medications! (My TSH never seemed to change in that time, but always still felt crummy). Now that I have fully accepted the fact that I will never be like other people, and will always have to watch what I eat, make sure I am getting the right type of exercise and amount for me, and looking at my health as a whole, I have come to peace with this disease. I have quite fighting it, quite being angry that I will never be like everybody else, and I may never again feel like I did before having the disease.

So these days it is not about screaming and crying to get off the roller coaster, since that is not an option, but instead finding ways to keep the roller coaster going smoothly. Keeping it as level as I can and bringing as much normalcy to my life as possible. No more anger, no more denial, just learning how to life with this disease to my best ability. And finding people like you who understand how I feel, and can support and lift my spirits on those days that I start to climb up a hill knowing how much I could fall the next.

Just wanted to share my thoughts for the day!


By November 29, 2011 - 7:47pm

Rhonda, it is amazing the connections they are starting to find between thyroid disease and just about anything else!

I am glad they finally figured it out, but very sorry it took so many years. Welcome to the stupid roller coaster! :)


November 29, 2011 - 7:47pm
By October 30, 2011 - 12:52pm

my thyroid disease started about 5 yrs ago i had been tired and cranky for many years i chalked it up to a hectic life of kids and a busness to run i went from dr to dr trying to find out what was wrong i finally nearly died in a thyroid strom before they figured out that i had a overactive thyroid so i spent the next4 yrs on a pill to lower my thyroid level and to gain a little weight since i was 5'7 and wieghed 107 lbs and was exhausted all the time , then in 2009 i had a pretty big nodule ended up having 90% of the thyroid removed , so now i am on synthroid for the rest of my life , i had a hysterectomy this feb 2011 went on hormones and messed my thyroid level all up ,i had my gallbladder out in 1984 it was grown together, and had low blood sugar before the thyroid was removed i havent had any problems with low sugar since the surgery i wonder if all that was conected somehow , my mother had thyroid disease and diabetes and also gallbladder diease , she passed from kidney failure and thyroid diease

October 30, 2011 - 12:52pm
By August 31, 2011 - 11:13am

Thanks Daniedoodles! As normal as they can become, they are still in a pain in the butt :) At least here we can vent with each other, knowing that the other members will know exactly what we are talking about, and never doubt us. That is the biggest problem with this, is getting our doctors or friends and family to quit doubting us! Just because you can't see what is going on inside my body doesn't mean it isn't happening!

Let's keep lifting each other up, and making this rollercoaster more barable :)

Thanks again!

August 31, 2011 - 11:13am
By August 30, 2011 - 8:30am

Its so sad how many doctors don't listen to us crazy women! I went from doctor to doctor, and not one of them looked at my blood counts to find that I had cancer, A YEAR of complaining about it. When I sunk into a deep depression after everything was said and done with the cancer, I had no clue what was wrong with me. I just knew I was tired, I gained so much weight in the matter of weeks, and I was deeply sad with no rhyme or reason to it. I called my dad and told him I felt like I wanted to kill myself, but I didn't know why! He immediately told me something serious is wrong, and I went to the Dr. I didn't want to go through the hellish circus of one more thing wrong, and no one knowing why... But luckily for me, the doctor I went to decided to test me across the board for anything and everything based off what i told her... and within a few months I had started medications and was starting to feel better. I'll never be the same person I was before my thyroid took a dive... but I definitely have a better understanding as to why I was feeling the way I was, and I now understand why I'm having lows! I think its harder in the beginning.... Heather is right, the constant ups and downs become "normal" for us. I'm always around to listen, and keep pushing myself and others forward.

August 30, 2011 - 8:30am
By August 29, 2011 - 8:11pm

Thanks imsdac! At least I know I helped one person, and that is enough. Now, if we could just level out to feeling great :)

Hopefully sooner than later, since there is so much I would love to do if I could just get the energy! We just have to get you past the "why me" stage (I was stuck in it for too many years) and into the "how to help my self and be grateful for the good days" stage. . .



August 29, 2011 - 8:11pm
By August 29, 2011 - 3:34pm

I hope that someday I will come to the same realization. I guess I haven't been on the roller coaster long enough yet. I was so thrilled recently that my symptoms were under control and then I learned pretty quickly that with the highs come the lows too.

I'm still at the point where I'm saying "why me?" I'm still mad about the fact that I basically diagnosed myself... that I went from dr. to dr. and from specialist to specialist and not one of them realized I was hypo. And then once I realized what it was, I had to fight again to get the meds I needed to feel good again.

Thank God that you came along to help me. Without your advice and encouragement, I would have never found Dr. Bouc. I finally found someone who believed me and because of this nasty disease, I was also able to find a friend that knew exactly what I was going through.

Thank you for putting yourself out there in order to help others. When I am myself again and strong enough I want to help educate others about this dreadful illness and to make them aware of all the bad medical care most endo's and other thyroid "experts" are preaching.

Your story gives me hope. You are an inspiration to me and together we will get through this!

August 29, 2011 - 3:34pm

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To explore and discuss the different treatments available for thyroid disorders, and to connect to and learn from other sufferers of the impact the thyroid can have on your everyday life.


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