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Newly Dignoised with Relapsing-Remitting MS Join this Group


By HERWriter Guide December 19, 2010 - 1:12pm

Hi Suzanne (and others)

Thanks for creating this great Group!

Do you have questions for us or is there something we can help you with? Tell us your story and we'd love to help out and offer our support!


By October 27, 2011 - 10:25am

Have you looked into alternative therapies? I tried most of the interferons and the side effects were awful for me. I now am on Low Dose Naltrexone. It is not approved for MS but it is in the research phase. There is tons of research on it on the web, you just have to do a search for LDN and MS. I also reccomend you look into Ivy Larson's book, THE GOLD Coast Cure. She has MS and is treating it strictly with diet, and is doing great.

I was diagnosed with MS in 2003 when I lost most of my eyesight. Very scary but once the dust settles it becomes less scary.

October 27, 2011 - 10:25am
By May 18, 2011 - 1:13pm

My name is Jessica, I am 31, and I was diagnosed with relapsing-remitting MS two weeks ago. A few years ago, I had an episode in which the right side of my face went completely numb...I was terrified. By the time that I could be seen by a doctor, the symptoms had already disappered.

A year later, I had some "dizzy spells." I went to an audiologist, and nothing was found to be wrong. Again, the symptoms quickly disappeared, so I did not think about it.

In the last year, I have noticed a loss of balance and coordination. I am used to being very athletic, so it was very noticeable to me. I have always been a social drinker, and I also noticed that I would get drunk off of a small number of drinks; my symptoms were also significantly worsened (balance and coordination).

So, after a particularly embarrassing game of kickball at which I COULD NOT run to first base after a kick, I went to a Neurologist. He sent me immediately (after performing some tests) to get an MRI of the brain and spinal cord. The images depicted several lesions, and thus a diagnosis of MS was given.

I have now seen Dr. Ratchford at the MS Clinic at Johns Hopkins, and have an appointment to see him this Friday. At this time we will decide on a treatment plan. He recommends "Interferon" drugs...?

Any suggestions?

May 18, 2011 - 1:13pm

Group Leader

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On monday I was dignoised with RRMS (Relapsing-Remitting Multiple Sclerosis) I would like to here from people that know what I am going through and how to deal with the news in a productive and positive way.


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