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Restless Legs Syndrome Support Join this Group

I suffer from several sleep disorders.

By May 4, 2012 - 12:08pm

HI! I am suffering from RLS, PLMD, central sleep apnea and low oxygenation. I use a BIPAT

HI! I am new to the group and do suffer from several sleep disorders including RLS, PLMD, central sleep apnea and low oxygenation. I use a ''BIPAP machine every night with a full face mask that drives me crazy! It leaks so badly. They have ordered my third new one. It was ordered Tuesday. I just got my new machine on Monday. I am having a great deal of difficulty getting enough hours of use due to the chronic leaking mask. The pressures were just increased and it is nearly impossible to stop the leaking. I hope this newest mask that is on its way will do the trick. I am so sleep deprived and exhausted that it is difficult to get through the ADL's. I also have Myasthenia Gravis, fibromyalgia, chronic fatigue and COPD, among other things. My symptoms keep me fairly inactive although I try to stay as active as possible...I don't want to loose what strength I have so I try to take short walks everyday 2-3 times a day. I do get myself together each morning and manage housework on a limited basis. I am also chronically anemic which doesn't help the lack of energy nor does the hypothyroidism. But, I manage and keep on truckin'. I have to. I want to. Life has too much to offer to lay in bed all day, so I try to find quiet activities I enjoy and I keep my faith strong in a Creator that made me. I'm this way for a reason and I'll keep doing my best to manage as well as I can. The RLS is almost constant, but the medication seems to help a little. Sometimes. It is very tiring and nerve wracking but, like I said, one has to keep on trying to do their best. Thanks for listening and I look forward to hearing from someone! Maybe somebody knows some techniques to help control the movements. bbnrse

By May 19, 2012 - 1:21pm

I will. Thanks.

May 19, 2012 - 1:21pm
By HERWriter Guide May 6, 2012 - 3:54pm

Hi bbnrse

I had RLS in pregnancy and in the past 6 months have seen it creeping back but not to a disturbing degree. My husband was diagnosed with sleep apnea at the age of 32 - fit and in good shape. He has had many problems with leaks but his mask right now seems to be working. He goes to bed looking like Darth Vader too.

Have you checked out our Restless Leg Syndrome pages? You can start here: http://www.empowher.com/condition/restless-legs-syndrome

Let me know what you think!


May 6, 2012 - 3:54pm

Group Leader

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This is a place for you if you are suffering from Restless Legs Syndrome, or RLS. If you are suffering from severe sleep deprivation because your legs will not let you lay still, this is the place for support and some answers. There is no cure, but there is more and more help out there to be had, and we can help each other. We will also be able to discuss many sleep disorders since RLS is diagnosed as a sleep disorder and a movement disorder. PLMD, sleep apnea, and plain old insomnia.


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