Nancy shares when she was diagnosed with pulmonary fibrosis and how this has changed her life.
I was diagnosed with pulmonary fibrosis around a year and a half ago.
My doctor at that time told me that within five years I would be in hospice care and when I heard that I was petrified.
Since I was first diagnosed the main life change for me has been that I did have to quit work or decided to quick work.
It was taking a lot of energy, a lot of mental energy, physical energy – everything that I had to try to keep up.
So last July I decided to stay at home and since that time I feel better. I sound better. I have more energy because I can do what I need to, when I need to do, I can stop when I need to.
I don’t have to go on and on for eight hours. It’s been the best thing I could do and now I have time for me taking care of me.
Since I have been diagnosed the symptoms haven’t changed a lot except to sort of worsen in intensity. I do need more oxygen now; it’s a higher delivery rate.
I get tired sooner. I get shaky sooner. I just don’t have the stamina that I did at first.
But I find with exercise and walking and positive thinking that I can keep up a lot of that energy.