Facebook Pixel

Truth Be Told - Living with Lung Cancer

Rate This

I had my every two week appointment with my oncologist yesterday. I was on my own, something that doesn’t happen too often. There were two things on my agenda - the increased hip pain and the steroid side effects I’m experiencing.

He wanted to go over treatment options and make sure we weren’t missing anything. As for the hip pain, I’ve pretty much decided to leave it be. As long as I use my cane for any distance and stay off it as much as possible the pain is controllable with just a slight increase in my usual rescue oxycodone. No reason to clutter my life right now with scans and appointments to thinkabout the possibility of additional radiation unless it gets to the point where symptom control with pain meds stops me from doing things I want to and could otherwise be doing.

Next, we went through emails, path reports and consults to make sure my tumor had been tested for every single mutation that might qualify me for an active phase II or III trial for my cancer. It has. Not eligible. Phase I is all that’s available. I haven’t ruled that out, but I’m not inclined to put a whole lot of energy into either looking for phase I trials or, especially, committing a lot of time to participating - either for travel or treatment.

Finally, I clarified with him what the steroids are currently treating and we talked about the side effects I’m experiencing - proximal weakness (difficulty getting up out of a chair), weight gain and moon facies. I’m going to very gradually try decreasing the dose to see if I can find a dose that will control the nausea (it also helps with the bone pain) but lightens up on the side effects a little. That’s a 25% reduction per week, so I’ll let you know how that goes.

So I went to the back for my Gemzar. My chemo nurse hooked me all up and after a while sat down for a chat. It was really quiet yesterday afternoon, unusual for a Tuesday, and I was her only patient. She was taking the opportunity to talk to me about what I’m thinking and feeling these days while I was alone.

Add a Comment1 Comments

HERWriter Guide

Hi LIsa - Thanks for the update on how you're living with cancer and for sharing your thoughts and feelings with us. I know from my own experience as a cancer survivor that many people are just plain uncomfortable talking about cancer and therefore just don't say anything. I'm grateful for your straight-forward and plain spoken attitude, and the opportunity to learn from you. Please stay in touch, and take good care. Pat

October 15, 2009 - 5:38pm
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy
Add a Comment

We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.

Lung Cancer

Get Email Updates

Lung Cancer Guide


Have a question? We're here to help. Ask the Community.


Health Newsletter

Receive the latest and greatest in women's health and wellness from EmpowHER - for free!