I know that by now I shouldn’t be surprised at how difficult it is to achieve anything like a steady state in my life.
I’m a slow learner, though, and it still surprises me how many highs and lows can be crammed into one short week. A week ago I cheered my daughter’s school volleyball team to a resounding loss. Thursday was the end of week one on Tarceva and, although the rash I was told to expect was becoming more pronounced, it was certainly nothing I couldn’t live with. I woke up with a sore throat, but assumed it was related to my maniacal cheering at the volleyball game. Friday I gave an interview to a local radio show about my story and the Free to Breathe 5K in Glastonbury. Shortly thereafter, I started to have cold symptoms. Saturday morning I started my day at 6:25 am with an interview at one of the local TV stations about the Free to Breathe event. At 10 am I went down to the village green with my father and stepmother to watch my son march in the local citizens’ day parade. By this time I was sneezing all the time and my nose was running constantly - not the best thing when one’s Tarceva rash around the nose and chin is progressing.
Sunday morning was the Free to Breathe event and a beautiful day it was. The morning dawned crisp and clear. My team consisted of ten people with over five hundred participating in the event altogether. I spoke briefly to the crowd before we set off and then walked my 5K. It felt great to be actually doing something to contribute to the larger fight against lung cancer. Meanwhile, both my cold and my rash were getting worse.
Monday I felt so poorly that I tried to call out sick. They couldn’t find anyone to cover my shift, though, and by the time I got up and showered I was feeling well enough to get to work. I called my oncologist and asked him to call in some antibiotic gel for the rash. Tuesday I was off and went to see my oncologist for a scheduled follow up. He was thrilled to see the rash and brought the nursing staff in to see it. I was feeling pretty overwhelmed by this point - my scalp hurts quite a bit and I’m having trouble sleeping and the facial rash is painful and very ugly.