If you are diagnosed with Alzheimer’s disease (AD), it is important that you and your family members begin to make plans and decisions as soon as possible regarding your future care and treatment. You will eventually begin to lose the ability to do some tasks for yourself and will need a caregiver to help you. This caregiver may be a family member, friend, or hired health professional.
In the vast majority of cases, the primary responsibility for the care of patients with AD falls on a family member, usually a spouse. Over time, as the condition progresses, the spouse caregiver will find it more and more difficult to meet the needs of his or her loved one without additional help. Eventually, care becomes so burdensome that placement in a nursing home becomes necessary.
A study of spouse caregivers of patients with AD showed the value of caregiver support. Nursing home admissions were delayed in those spouses receiving counseling, encouragement of weekly support group participation, and the availability of telephone counseling at any time.*¹
Lifestyle changes that can help you function as the disease progresses fall into two categories:
As a person with Alzheimer’s disease, your abilities will gradually decline and you will be unable to address planning, caregiving, and treatment issues. The following guidelines apply to you, as long as you are able to be involved in planning, and to your family and caregiver.
Legal and Financial Planning
Legal and financial planning should be done as soon as possible after diagnosis. Rely on trusted financial and legal advisers to set your affairs in order.
As the disease advances, you will not be able to make assessments about treatment and other healthcare issues. It is important to make your wishes known to your family and doctor early. In addition, choose a healthcare proxy (someone you trust to make health decisions for you when you are unable to do so yourself) and/or complete a living will.
A study found that simple lifestyle changes, such as
(eg, five small, well-balanced meals per day),
(eg, daily walks),
stress reduction techniques
(eg, relaxation exercises, such as meditation), and memory exercises (eg, doing crossword puzzles and brainteasers) may improve cognitive function and brain efficiency. Researchers hypothesize that such improvements may delay the onset of Alzheimer’s disease and perhaps even lower the risk of developing the disease. Talk to your doctor about how you can incorporate these changes into your routine.
As the disease progresses, though, your moods, capabilities, and behavior will change. That is why it is important for you to make make arrangements for daily care, learn how to adapt your home environment for safety, and research available community services. These steps, when done early, will help make the transition smoother for you and your caregiver
Choosing Healthcare Providers and Facilities
Although healthcare facilities may not be needed immediately, it is important to research your options. This way, you or your caregiver can find a place that matches your philosophy of care, location, and financial capacity.
Managing Alzheimer’s Symptoms and Behavior
As the disease progress, your abilities will decline, leaving you unable to address a number of issues on your own. Thus, the following general guidelines are directed toward families and caregivers.
Create a Calm Environment
People with Alzheimer’s disease may become agitated and disoriented as the condition worsens. Therefore, keeping the home environment consistent, quiet, and restful is important in preventing and alleviating possible triggers of agitation. Some methods to create a calm environment include:
Develop a daily routine
Keeping noise levels to a minimum
Maintaining consistent placement of furniture and familiar objects
Providing a well-lit environment during the day
Providing orientation cues in and around the house (clocks, calendars, phone list with names, appointment diary, meal schedule)
Limiting caffeine intake
Providing opportunity for exercise
Developing soothing rituals
Encouraging close family and friends to visit
Adapt Home Environment for Safety
It will be very important to adapt the home for personal safety to prevent injury to a person with Alzheimer’s disease. There are many organizations that can provide detailed information on how the home may be adapted. Home safety changes include:
Installing locks on cabinets containing medicines, alcohol, guns, or toxic substances
Removing electrical appliances from the bathroom to prevent shocks
Installing grab rails to avoid falls
Removing throw rugs to prevent falls
Setting water temperature to 120°F or lower to avoid scalding
Ensuring proper lighting
Monitor Personal Comfort
People with advanced stages of the disease will not be able to take care of their own hygiene and personal comfort needs. Caregivers will need to frequently monitor:
Hunger and thirst
Emotional state (especially looking for signs of
Please be aware that this information is provided to supplement the care
provided by your physician. It is neither intended nor implied to be a
substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER
IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the
advice of your physician or other qualified health provider prior to
starting any new treatment or with any questions you may have regarding a