December 2, 2008

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butterfly01112003

I have had 2 major arrhythmias and now I have atrial Fib. I first had Wolf Parkinson White (W.P.W.)which I went through a catheter Ablation. Then while they were in there they found Inappropriate Sinus Tachycardia (I.S.T.)
I went through 3 ablations with that one. it was just a matter of finding a Doctor that was willing to do a catheter ablation when the arrhythmia is around your diaphragm nerve. I also have sick sinus node dysfunction so I now have a pacemaker. To let you know, A Fib is really nothing to sneeze at, it is dangerous. and should be monitored by a qualified cardiologist. as long as you understand what you are looking at. with W.P.W. it shows symptoms as early as your teens to your mid 20s. I.S.T. I have noticed can show itself in either your 20 to 30 or even later, but not much information is found on theses Arrhythmias, due to the fact that they are found in just 10% or less of the population. But with W.P.W. it is one that will cause a heart attack at any time in your life and for no reason. it is all electrical. My A fib is really mild which is so much easier to deal with. my I.S.T had my heart racing as fast as 190 beats per minutes. that would occur at any moment, day or night sleeping or awake, happy or sad. even reading a boring book. hence the name Inappropriate sinus Tachycardia. Now I am only going by what I have experienced. which I have had to deal with these since I was 16 years old. Now with Wolf Parkinson White syndrome, it has a distinctive read out on a simple EKG. while I.S.T. you need to wear a holter monitor. because the arrhythmias will hit at any time during the day or night. I am part of a support group on I.S.T. there are a lot of people who are in other Countries, where the Doctors really don't understand how severe their arrhythmias are. They are told that they have anxiety. But I have heard of people being persistent, and not letting the doctor put them off. If you really think that you need more attention to your heart don't let a doctor put it off, you are the one that has to live in your body and you have to live with what ever you are feeling. the doctors can run tests and diagnose, but in the end,, you are the one that has to live with your body. if you feel that there is something odd that is going on in your body..just keep looking for someone that will listen. The worst that you will find is that you are normal and that is the best news ever!!! But, if there is something going on, they can find it. You will be treated accordingly and feel a lot better!!!

Ok im 23 soon to be 24 and I have noticed for the past, maby 3 years that my heart tends to 'jump' now and then, skip a beat, or so it would seem. Is this a sign that I have afib? Maby I could get some openions befor I seek profesional help.

Tina T

It's great you're researching your symptoms and potential causes before heading out to see a medical professional. It will make you a more informed patient and help you advocate for your health. Here are a few resources you may find helpful.

According to the NIH, symptoms of AFIB include:

* Sensation of feeling heart beat (palpitations)
* Pulse may feel rapid, racing, pounding, fluttering, or it can feel too slow
* Pulse may feel regular or irregular
* Dizziness, light-headedness
* Fainting
* Confusion
* Fatigue
* Shortness of breath
* Breathing difficulty, lying down
* Sensation of tightness in the chest

For more in-depth information, visit http://www.nlm.nih.gov/medlineplus/ency/article/000184.htm

Also, the Cleveland Clinic -- one of the best heart hospitals in the country has a great resource center where you can direct your questions to cardiac nurses -- a feature I can vouch for as I've used it myself.

http://www.clevelandclinic.org/heartcenter/

You may also want to check out the American Heart Association's Web site where you can find diagrams that explains AFIB in more detail.

http://medmovie.com/mmdatabase/MediaPlayer.aspx?ClientID=65&TopicID=0

Finally, you may want to check out the EmpowHer's patient advocacy sheets when you see your doctor. The advocacy sheet can be found here...
http://empowher.com/conditions/advocacylist

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