Alice discusses how she manages her severe osteoporosis and the fear that it creates.
How I handle living with severe osteoporosis is a day-by-day step. In the beginning I was in denial. I didn’t want to take the medications. I didn’t want to take the calcium. I was told not to lift over 10 pounds. I didn’t want to follow the rules. By following the rules it would make it real and at that point I was only 35-years-old. I was a mother of two young children and suddenly they were having to do things for me.
I didn’t want to feel handicapped. I didn’t want to look handicapped and it was really hard and what would bring the reality back is when I would break a bone. It’s like if you hurt yourself or your stub your thumb or something, you take care of it and you kind of are cautious of it. When you don’t have a broken bone you forget and you do things you shouldn’t do, and then when you break a bone reality hits you real quick. I really do have a problem and now I am paying for it and I feel it.
But that cycle just repeats itself. As soon as you are healed again, it’s I don’t want to be handicapped. I don’t want to look handicapped. I am still too young to be this. Where am I going to be when I am 80 or 90 years old if I am this way now?
I live with fear of the osteoporosis because when I fall I am afraid that that’s going to be the one that puts me on the wheelchair and I wonder how I am going to survive and who is going to take care of me and where I am going to go. I am uninsurable.
I used to work for a local law enforcement and we hired a new marshall. I had to have a medical update and my doctors told me I had to go on full disability because my bones were in all like that of a 90-year-old and I had just turned 49 three days earlier, and so now I am on full disability and I am uninsurable. So I live with the fear of breaking something major and having major hospitalization and surgeries and even more helicopter rides because when I had those injuries I had insurance, and now I don’t.
So I worry about the financial part of it and I worry about the emotional part of it and I worry about the physical part of it.
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