My good friend's 4-year old daughter was just diagnosed with juvenile dermatomyositis on Wednesday, and we are scared and shocked! What does this mean for the long-term health of her daughter? My friend also has a 12 month old daughter; what is the likelihood that she would develop this disease, too? Any way to prevent it?
I was wondering if you all had access to a pediatric rheumatologist, as my friend has some questions she would like to ask (for a 2nd opinion, they really like their current doctor).
Here are some of our initial questions:
- What treatment options are available, both traditional and alternative?
- What kinds of physical improvement can we expect with treatment, and how likely is it that this disease will go into remission?
- Any dietary changes or other lifestyle changes that would help?
Any other information would be helpful, as we're just beginning our research to understand this disease/disorder.
thank you so much!