in june of 2001 i went to the ER for kidney stones and ended up with crps from the IV which is a one in a million chancwe this will happen because this is the worse way to get crps because it starts effecting your organs i have had to have my ovaries removed as well as my galbladder half my thyrid all because of inflimation it has caused my organs when i had the thyroid surgery my dr felt that my labs were fine but i knew different but i still trusted my dr for over two yrs by the time it was diagnosed as hypothyroidism i also have adrenal issues as well my body hurt so bad all over my muscles felt like i was working out 24/7 the brain fog was so bad and the pain on top of the pain of the crps and the fibro was almost more then i could take i finally have been put on the right amount of meds i hope before now my endo dr put me on three times the amount of steroid i should have been on and also put me on so much thyroid med that it caused my growth hormone to go so high they then thought i had a pituitary tumor it also caused me to put on 30 pounds that now i have to try to lose again i also was in so much pain i could not walk i was in a wheel chair since getting off so much meds i feel like a new person then i get to come to the part of my left side of my fave becoming atrophied over the last four years and no one to help i look horrible so besides being in pain i now have lost half my face to parry-romberg syndrome went to see a plasic surgeon who had seen only two other cases of this in his 40yr practice thought great he will be able to help only to be told b my ins. that this cosmetic and they will not cover it i believe this is because they do not even know what prs is i have a disease that has taken my face that is no different then beast cancer taking a persons breast which they will cover my life the past 4 and a half yrs has been one thing after another without much help so i am hoping that i can help someone else not to go through all i have you know your body and if the dr will not listen to you and only go by labs change drs i have found this outt he hard way the one thing that has helped me through all of this is my relationship with God and my family i have a wonderful husband who has had to work 7days a week plus do all the cooking and cleaning around our house my two boys are another gift from God please be thankful for everyday you have with your family and think about someoe else when you are complaining about cooking dinner or doing something you use to with your family i would love to be able to just clean my house or go to some of the places my kids ask me to go also if you know someone who is in pain 24/7 please believe them and try to be a better friend to them i have lost almost every friend i had over the past 10 yrs because they say just make your self do it or i had a pulled muscle in my back well the pain from just the crps is the same as a amputation of a finger which is quick that pain alone i have 24/7 not including everything else i have so please lets just try to love each other more as Our Lord ask us to do