When I was diagnosed with a posterior fossa arachnoid cyst in 2004, I had no idea what that meant or would mean to me over the next few years. I was terrified and had no one to turn to for help, answers, or treatment. Meanwhile, my health deteriorated over the months as I tried desperately to get someone.....anyone, to listen to me that all the symptoms I was living with were not in my head, but were real. And I was very sure that they very large cyst discovered on the back of my brain was the culprit.
It took months and months to find the one guy, the one doctor who knew and understood these types of cysts, believed me, and said that I would need surgery in order to get the cyst under control - and very possibly, save my life.
I felt totally alone and had little information to read and learn about the type of brain cyst I had. I was scared and after ra certain point, when the cyst grew too large, I even became unable to think clear enough to do anything about researching the topic and condition.
When everything was said and done....my several year quest to get help and having a ,ultitude of complicaitons....I had decided to write about the condition and my experience. So I did and now, my book, "It's all in Your Head," is in publishing and can be ordered. I want to reach and help as many people as possible and let them know that they are not alone. And that there is hope.
You can find and buy, "It's all in Your Head" at [Link Removed by EmpowHer Moderator]
God bless and for those loiving with an arachnoid cyst or any brain cyst....don't give up. And please know that you are not alone!