Katie Brown has worked in nonprofit and patient advocacy for over 10 years.
She is the Director of Support and Advocacy for LUNGevity, is the foundation’s social media strategist and certified Patient Navigator.
Her transition from the corporate world to nonprofit happened in November of 2002 shortly after her father’s small cell lung cancer diagnosis.
She is the co-creator and Director of Lung Cancer Support Community (LCSC). That website was the first of its kind to provide active forums and an online lung cancer support network for lung cancer patients and their family members. Today it holds over 400,000 posts.
She is the event founder and coordinator for Breathe Deep Dallas-Ft Worth, facilitates DFW’s first in-person lung cancer support group at the Arlington Cancer Center Trophy Club, lobbied with Smoke Free Texas and for CPRIT, has been a local and national delegate for Livestrong 2006-2010.
Since 2006, Katie has been recognized with many awards and nominations for her work in nonprofit and patient advocacy.
She also contributes to articles & blogs with a special interest in raising awareness, patient support, advocacy training & the use of social media to promote good works. In her spare time she speaks at conferences, health fairs, hospitals, support groups, schools and events and routinely volunteers with nonprofits and charities.
She shares a home in Texas with her husband, two children, four miniature dogs and a hillbilly hedgehog.
17 yr cancer survivor.
11 yr lung cancer patient advocate.
These thoughts expressed here do not reflect opinions of the Foundation and are solely my own.
I recently posted a comment about disliking Mother’s Day and that comment was the most active thread of the day on my social media page.
People were sending virtual hugs and advice on how to ...
May 10, 2013 - 10:36am
September 13, 2012 marks 10 years that I have been a lung cancer patient advocate.
So much has happened in my life within those 10 years. I’ve had a lot of personal and professional ...
September 12, 2012 - 2:53pm
I wanted to take some time today to write about volunteering.
From my experience and purposes at times I talk about volunteering in the lung cancer community and supporting those affected by ...
June 19, 2012 - 9:16am
Recently another thought-provoking post was made on LUNGevity’s Lung Cancer Support Community titled, “What do you do differently now?”, asking our members what they do differently after having ...
May 22, 2012 - 7:20am
It’s been almost a decade.
And hindsight is 20/20.
I wish I would have known the right questions to ask, how to seek out available treatment options and I wish there would have been resources ...
May 22, 2012 - 7:11am
Being a young adult without parents is hard, but it isn’t rare, and unfortunately losing a parent to lung cancer isn’t uncommon. Statistic s shows that one in two men and one in three women will ...
May 22, 2012 - 7:03am
Recently a new post on the Lung Cancer Support Community message boards posed a question asking why some people care about advocating for a cause and why others don’t. Many of our strongest ...
May 22, 2012 - 7:00am
Hearing that you or your loved one has lung cancer can be shocking and overwhelming.
There are many emotional stages that you and your loved ones experience even before a treatment plan is ...
May 22, 2012 - 6:57am
Throughout my 10 year career as a lung cancer patient advocate, I’ve had many people ask me questions about advocacy, how to get started and how they can make a difference in the fight against ...
May 16, 2012 - 2:02pm
When I was 22 I was diagnosed with early stage cervical cancer. I had two surgical procedures and years of close follow ups, but I went on with my life and never spoke about it with anyone…I mean ...
May 15, 2012 - 10:55am