I found this website while researching some of my recently diagnosed conditions. My entire life has changed in the past two months, to put it mildly! What began in the beginning of 2011 as constant fatigue culminated in an episode of severe facial and abdominal swelling, plus a 12-day unrelenting headache - which landed me in the local ER. Within minutes they had me on oxygen and were taking labs. I spent two weeks in the hospital, and after lots of doc consults (neurology, cardiology, pulmonary, nephrology, etc.) and an open lung biopsy, discovered that I had a quadruple dx of interstitial lung disease, pulmonary hypertension, heart failure, and renal insufficency. Wow! And for months I just kept thinking I was "out of shape!"
At this point in time, I've got the kidneys back to near normal function; my main concern is the pulmonary hypertension - which along with the heart failure leaves me soooooooo tired, alllllll the time. But on the bright side, I quit my job last December to be at home full time (coincidence? I think not!), so I get to nap and rest a lot!
I have the best husband and kids in the world, wonderful friends, a great team of doctors, and best of all, a personal relationship with Jesus Christ!
So whatever is to be, I know I'm in good hands...