mary.oconnor
Cushing's and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing's Help and Support, web designer, piano teacher and mom.
I am a Cushing's patient who has dealt with Cushing's symptoms since 1983 (or earlier) and the aftereffects of pituitary surgery since 1987.
Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. The site has grown to astronomical numbers. This disease isn't as rare as doctors have told us!
In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing's symptoms.
I am not planning to have any more rare and unusual diseases.
My entire bio to date can be found here: http://www.cushings-help.com/maryos_story.htm
I am 47, but in my mid 20's I developed a lump at the base of my neck, gained about 70lbs in my trunk mostly, lost muscle mass in my arms and legs, and developed bright red/ purple stretch marks ...
mary.oconnor commented on Anonymous' post Can Cushings be diagnosed by one blood draw done in the morning?