I was diagnosed with SLE(lupus) in 1984 but I and doctors are sure i had long before that since i had mono more than 3 times! Back than you supposedly could only get it once so that was clue something else was going on. With it I immediately got RA arthritis in both my feet.
I was lucky that i got a great doctor and eventually had great team. I tried to keep working ft than pt as long as i could but eventually fatigue and pain just was too much so i left my job (that i really loved) in 1997. I believe fibro was now part of my health just not diagnosed.
We moved in 2000 up to mtns ...we loved hiking and were trying to hike all of PCT so this was area we had not ventured into....and my husband wanted a quieter area to work. I immediately started getting sicker....as was told i had fibromaylgia now as well. After a emergency surgery to remove a tumor on ovary...that went 4 hours longer than should have...i ended up with hernia..which i have to this day.
I also suffer from PTSD due to childhood trauma. I found out up here that reason i would pass out from bad period cramps was due to endometriosis. Which they tried to remove but was to invasive.
I had i believe at least one surgery for first 6 years up here....my husbands alcoholism was back as soon as we moved up here in raging form..so sure that contributed to a lot of my health problems. We separated after he finally went into rehab...one week i was his soul mate next he hated me and blamed me for all that was wrong with his life. He wanted to break me...and eventually he did.
SInce than...i just have not been able to get back to be the naturally optimistic, wake up happy, person I have been all my life. The pain was so bad i cried and eventually found a pain specialist who really helped and got me on healing track.
I had major depression at worse with husband but now i say it is low grade but pills do not help and many affect me very negatively. Like my brain is allergic to some.
So i have some other smaller things like the hernia... ruptured disc..stuff like that but really it is the lupus, fibro and ra plus pain that gets me the most.
for those of you who are not newbies in chronic illness what would be the best advice you could give them?
Like i say find best doctor that fits with you and hopefully than they will send you ...
March 27, 2013 - 4:56am
I love to hear how others handle doctors who do not listen to their patients. There are stats out that prove over and over that doctors including women doctors do not take women talking about ...
March 19, 2013 - 2:40am
I noticed a lot more depressing threads in groups this holiday season. One, was person who said they were going to commit suicide that night. What are we suppose to do with that kind of post? ...
December 24, 2012 - 12:49am
How do you handle trying to do all the holiday stuff with out ending up in bed or worse back in the hospital? I tend to do a lot of shopping on line and just have it mailed to people.
But part ...
December 8, 2012 - 8:35am
Do you have a favorite online site where you have met just the nicest people?! Are there online book, music or movie clubs where you can discuss your ideas about these things.
How about online ...
December 7, 2012 - 12:41pm
I have been attending local support group for breast cancer and women chronically ill in my small town In the group which is run by 2 great RN's they mainly do a meditation ..often small one at ...
November 16, 2012 - 2:22pm