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Legal Rights of Students with Chronic Illness

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This has been an unusual year for us at Advocacy for Patients with Chronic Illness. In previous years, come the fall, we’ve gotten a load of requests for assistance from parents of students with chronic illnesses who want to plan ahead in case their child gets sick and misses a chunk of school. This year, though, the fall was quiet and we couldn’t quite figure out why that would happen all of a sudden. I’m not sure this answers the question of why the fall was quiet, but this spring, we have been deluged with requests for help from families – usually moms – at the end of the school year, when they realized all of a sudden that the school didn’t do what they had promised to do, and instead, their child was flunking classes or, in some cases, not graduating on time.

Schools are obligated to accommodate students with disabilities under a law called Section 504 of the Rehabilitation Act. A “disability” in this context is a substantial impairment of a major life activity. Major life activities are things like walking, talking, seeing and hearing, but also bowel, digestive and immune functions. It’s not enough to have a digestive problem; it must “substantially impair” the digestive function, for example.

If the student has a disability, then the school has to provide reasonable accommodations. What’s reasonable differs from one case to the next. Accommodations can be anything from easy access to restrooms to extra time on tests to the ability to reschedule assignments, get homework assignments sent home, get class notes – or even tutoring in the case of long-term absences.

Some schools think they don’t have to provide accommodations unless a student is doing badly in school. This is wrong. Under another law – the Individuals with Disabilities Education Act or IDEA – a disability only “counts” if, by reason of the disability, the student needs special education services.

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Jennifer, your message bears repeating over and over again. Some schools are very good in this department and others, not so much. My Daughter was diagnosed with Crohn's at age 17 and we were extremely lucky that her High School was well versed in 504 procedures. Had no issues with College either thanks to Campus Disability Services. Daughter is now 29 and has had some blips in the Adult Work World due to Crohn's but for the most part has been positive with the exception of a co-worker or two who don't get what it is like to have Crohn's and try to be 100% productive in the Workplace. I thank you for all you do in your Advocacy for Patients.

June 5, 2011 - 5:30pm
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