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Treatment Options for a Cerebrospinal Fluid Leak

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MedlinePlus pointed out that for most patients, the leak heals itself and patients do not experience long-term symptoms.


MedlinePlus Medical Encyclopedia. CSF Leak. Web. 27 December 2011

Columbia Neurosurgery. Cerebrospinal Fluid Leaks. Web. 27 December 2011

The Mount Sinai Hospital. Cerebrospinal Fluid Leak. Web. 27 December 2011


Reviewed December 28, 2011
by Michele Blacksberg RN
Edited by Jody Smith

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EmpowHER Guest

As someone who suffers with this condition its not so simple to live with it! Although it may 'heal' itself, this can take many many months - there can be multiple reasons that the internal scar starts leaking again ranging from poor dietary nutrtition and its effect on the permeability of the dura, to pulling the internal scar by ordinary daily movements (depending on where the breach in the dura is.
There are many of us that are house bound, have lost jobs, live in isolation on low incomes because of this condition. For some, standing upright is a nightmare because of low brain pressure, nauseau, pain etc, for others, they've enjured many many blood patches, dura repairs etc for it to be undone with a slight 'ordinary' movement such a bending down to pick something up or carrying something like a full kettle of water.
Thankfully there are some among us who, having learnt the hard way, are sharing their experiences so that those of us that this is all new to can at least get some emotional support with this condition as we all try to 'heal' ourselves.

August 4, 2014 - 4:18am
EmpowHER Guest
Anonymous (reply to Anonymous)

Hello.... I am inquiring because of my precious daughter that endured a rough epidural prior to her delivery of their baby boy. After delivery, she developed a very bad headache and she was told she needed a blood patch. They waited 24 hours to do the patch. The procedure went horribly as well. She was stuck 10 times and it did not work. Now she is home, on bed rest as they chose to see if it would heal on its own. They offered a second blood patch but she was so traumatized at this point she declined. We are a week out with absolutely no improvement. As a mom, I’m concerned. Was wondering if any had a similar experience and if someone could share how long they had to wait for the hole in the spinal sac to heal?

April 8, 2019 - 5:22am
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We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.

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