No one from that old life I'd lost came to visit me. No one invited me out for lunch. No one suggested going for coffee or to the beach.
These were all conscientious intelligent people. I'd still have to say their affection in the past for me had been genuine. What to make of this?
It seems to just be something that happens. Healthy people have no inkling of what it's like for a person who is chronically ill. The emptiness. The alone-ness. I did it too back when I was healthy and didn't know any better.
A short visit, a small gift, a phone call or note, can make such a difference when absolutely none of these things are going on.
I'm writing for the chronically ill who go through this, to say, you are not alone. There isn't something wrong with you if you get angry and your whole view of life has been turned upside down by illness and by being dismissed.
And I'm writing this for the healthy ones who have been oblivious up till now, but who want to make a difference. Go in and find your sick friend. Don't expect them to come out and find you.
The playing field is NOT level despite what you may think you see. The onus is on you, if you care enough.
I spent 15 years losing the battle against Chronic Fatigue Syndrome. Four years ago, I found treatment that worked for me, and now I am making a comeback.
Edited by Alison Stanton