Their accomplishments might be making breakfast and maybe getting dressed. If they're lucky they can sit or recline near a window, their only connection to the rest of the world.
5) To the heroes who petition for pensions.
People who are this sick should be on a disability pension. Many of us aren't. We can't prove we're sick or we are too sick to make the petitions and appeals. That minority who can speak up and make headway in this arena are performing a service for all of us.
6) To the heroes who don't.
Getting by on next to no money when you are too sick to work or are without a pension is a horrifying experience. It is however an experience that is the daily reality for far too many of us. Much harder than being able to work. Many end up homeless.
7) To the heroes who can't get out of bed. Can't hold their heads up. Can't speak.
This is a special and unique kind of hell. This creates a kind of isolation that's like being the living dead.
8) To the heroes who have been sick now for decades, heading into old age.
Many of us can look back on ten, twenty, thirty years of illness. The hope for a better future dies hard when you're sixty and haven't been well since early adulthood.
9) To the heroes who got sick so young they've never had a job, never had a driver's license, never fallen in love.
These hurt my heart the most, I think. The old can treasure memories, as they reflect back on healthier times. The young ones haven't had the chance to form these memories. The future is uncertain at best.
10) To the doctors, scientists and researchers and journalists who are determined to help us.
Chronic Fatigue Syndrome is not a popular disease. We don't have huge sums of money or support for research. We don't make the evening news, we don't have celebrity spokespersons or fund-raisers. The people who want to find answers for us are few, but they are precious to us. They are our lifeline. Many thanks.
Chronic Fatigue Syndrome Hits Teens Too