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Chronic Fatigue Syndrome: A Salute To 10 Kinds of Heroes

By HERWriter
 
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Chronic Fatigue Syndrome related image Photo: Pixabay

I don't think many people with Chronic Fatigue Syndrome see themselves as heroes. Or, maybe they do but they don't expect anyone else to see them in that light.

The limitations we face are so enormous that it can take everything we've got to accomplish very little at times. It goes against our grain, but we have to lower the bar for even small every day activities.

But the people with CFS who accomplish things, and those whose accomplishment is to just manage to keep breathing ... those who overcome their bonds, and those who must learn to rest within them are all heroes. Trying to move a rock that is too big, with energy that is too small and very often with next to no help from ... well, from anyone.

I have referred to our community in the past as a CFS Ghetto. But we are also a clan. Here's to the heroes of Clan CFS. My hat is off to every one of you.

1) To the heroes who manage to get up and go to work, then collapse when they get back home.

They use up all their precious teaspoons of energy to earn a living. Because they can work, people don't see them as ill. There's nothing left of them by the time the workday is over but there's no other way to pay the bills. And these are the lucky ones, who live a half-life.

2) To the heroes who stay home and raise their kids, from their beds and couches.

If they are lucky they have pensions or they have healthy spouses who shoulder the financial load. But their energy tank is always on E for empty as they give their tiny all to care for their families.

3) To the heroes who write about CFS in blogs, articles and websites.

This takes a lot of energy. And it requires the mental clarity that is so precious and rare in CFS. To protect this mental clarity, the rest of their time is spent regenerating, working up just a little more of that ability to get the word out that we exist.

4) To the heroes who must live cocooned away from the world.

Many people with CFS can't work, can't write, maybe can't read ... can't function as normal people think of functioning.

Add a Comment14 Comments

(reply to Jody Smith)

Exactly! amazingly, i am currently being helped by a lady who has become a nurse and a naturopath in the quest to fix her own cfs, and she is so clever, and helping so much. When I am better I will get her to teach me. She wants to help as many people as she can. She is writing a book to help those she can't physically reach, but it won't be done for another five years or so :) My story will be in the book to help illustrate the recovery process. Well that's the plan anyway.

April 28, 2011 - 4:12pm
EmpowHER Guest
Anonymous

I really appreciate this article. Number 9 the most. I just turned 18 and have had this illness since I was 15 almost 16. I can't work. Barely attend school. Not graduating with my class. Can't drive. Can't go out with friends. Can't play softball the sport I love more than anything. But atleast I can say I have a healthy supportive family, even though I feel like im dieing... im not. And somehow I manage to stay happy and look at the bright side. Some day I'll be better. Just got to stay strong, eat well, and exerciseeee!

April 27, 2011 - 9:15pm
HERWriter

Well, thanks. That touches me. :)

April 27, 2011 - 9:55am
EmpowHER Guest
Anonymous

Thank you Jody for a truly touching and eloquent post. You have done a brilliant job of explaining the many ways life with ME/CFS can be.

Please count yourself as several kinds of hero today {smile}.

April 27, 2011 - 9:49am
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We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.

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