but even then, energy is sapped like water swirling down a drain and then gone.
6. We won't be gardening or cutting the grass.
We might be able to watch someone else doing these things through the window. But even if we used to revel in our garden, and savored the smell and look of a freshly cut lawn ... at best this becomes a spectator sport.
7. We won't be playing golf.
Like so many cherished pastimes, golf for the avid player has entered the realm of stories about Once Upon A Time.
8. We won't be riding a bike or going for a walk.
Vertigo, along with joint and muscle pain and profound weakness puts these pleasures off-limits for many with CFS.
9. We won't be going out on a boat, or fishing.
Vertigo when trying to walk is bad enough. On a boat ... forget about it.
10. We won't be buying a summer wardrobe.
For many, living on disability, or worse, living without it, there isn't any money for this. Choosing clothes that don't stir up chemical sensitivities can be challenging. And for the person living in bed or curled up on a sofa, the fun of a new summer dress or new shorts and T-shirts seems pretty empty.
Some of us do better in summer weather, with symptoms receding. Others dread summer and humidity because their frail health plummets this time of year. When you're enjoying the summer sun ... think of us.
I spent 15 years losing the battle against Chronic Fatigue Syndrome. Four years ago, I found treatment that worked for me, and now I am making a comeback.
http://www.ncubator.ca and http://ncubator.ca/blogger
Edited by Alison Stanton