This is why the Internet, and networking across country borders, has become key in empowering patient advocates, exchanging information and best practices between the groups, and collaboration across languages and countries.”
In the United States, CML patients and caregivers can get support from the National CML Society (NCMLS), which provides a centralized hub of information. Founded in 2007 as Carolyn’s Hope, the organization quickly grew beyond meeting local needs and became the NCMLS in 2009, serving the needs of the CML community in the United States and its territories.
In Canada, the CML Society of Canada was established in 2006 and provides support, education and information on current and emerging treatments and on research initiatives.The society notes that the needs of the increasing number of surviving patients must be addressed with specialized care and monitoring.
CML Awareness Day is held on September 22 because the Philadelphia chromosome, which most often causes the disease, develops after birth when chromosomes 9 and 22 exchange some of their genetic material. It is estimated that by 2050 nearly 300,000 people in North America will be living with CML.
CML Support Organizations:
United States: The National CML Society
Canada: CML Society of Canada
(Note: Site is available in English or French)
CML Support Groups Directory Worldwide:
Targeted Treatments for Cancer Information:
Newsweek: Curing Cancer: What treatable tumors can teach us about improving the odds in the deadliest cases. September 9, 2010
Targeted Cancer Therapies: National Cancer Institute:
Understanding Targeted Therapies for Cancer: