You and your daughter do sound like you both have been on quite a journey already, and although a diagnosis can be a relief, it adds another dimension of "what now?" as far as finding the right doctors, treatment options and learning about recovery and healing expectations.
After viewing this video and reading the transcript, my question to you: What criteria are you using to assess finding the best surgeon for your daughter? Did the video offer any additional insight or questions to ask the doctor?
Have you spoken with the surgeon personally, and have you researched him/her online? We are happy to help in anyway we can, just let us know what you need.
How is your daughter feeling about all of this? She is welcome to talk with EmpowHER about being a patient with a new diagnosis, if she needs any additional support from others who have gone through this same diagnosis. we can help her find other patients or information that she needs.
Lastly, I found a case report online regarding this condition, published in a European medical journal:
http://www.springerlink.com/content/8c5rjb2p3nwjr8f5/
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You and your daughter do sound like you both have been on quite a journey already, and although a diagnosis can be a relief, it adds another dimension of "what now?" as far as finding the right doctors, treatment options and learning about recovery and healing expectations.
I found a resource at EmpowHER from one of our Medical Experts discussing (via video) the first steps: Surgeons: How can patients locate the best ones?.
After viewing this video and reading the transcript, my question to you: What criteria are you using to assess finding the best surgeon for your daughter? Did the video offer any additional insight or questions to ask the doctor?
Have you spoken with the surgeon personally, and have you researched him/her online? We are happy to help in anyway we can, just let us know what you need.
How is your daughter feeling about all of this? She is welcome to talk with EmpowHER about being a patient with a new diagnosis, if she needs any additional support from others who have gone through this same diagnosis. we can help her find other patients or information that she needs.
Lastly, I found a case report online regarding this condition, published in a European medical journal:
May 22, 2011 - 12:09pmhttp://www.springerlink.com/content/8c5rjb2p3nwjr8f5/
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