I'm so sorry that you have to fight this battle alone. Being a teenager can be tough on its own, being a teenager with CFS is even harder. Sometimes its a great idea to start a support group by making a flyer for a meeting or some pizza time (at your house, a park, a coffee shop) then give them to your doctor so that he can hand tell other teens with CFS to join you. Your doctor can't give you names or details of any of his other patients but the flyer for a meeting maintains privacy and leaves it up to the patient to decide whether or not they want to join you.
Comment Reply
Hi Anon,
I'm so sorry that you have to fight this battle alone. Being a teenager can be tough on its own, being a teenager with CFS is even harder. Sometimes its a great idea to start a support group by making a flyer for a meeting or some pizza time (at your house, a park, a coffee shop) then give them to your doctor so that he can hand tell other teens with CFS to join you. Your doctor can't give you names or details of any of his other patients but the flyer for a meeting maintains privacy and leaves it up to the patient to decide whether or not they want to join you.
I also found a group on FB https://www.facebook.com/MECFSVicTasNTYouth
and you may want to search on meetup.com to see if there are groups that meet there as well.
Wishing you the best,
Rosa
November 16, 2012 - 7:43amThis Comment
Reply