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My sister has a heart disorder called "Long QT Syndrome" which caused her to go into cardiac arrest that resulted in her having brain damage,.
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On 21st Feb 2018 night, my wife suffered cardiac arrest and then lost is pulse. We hurriedly bought her to hospital but due to few minutes time gap, brain did not get oxygen. Doctors revived her pulse and breath but till now i.e. 14th April she do not response on calling. Her eyes opened up, eye ball and eye lid moves. Occasional movement of neck and forearm but no movement of legs. Doctors say will never be able to speak, eat or walk. She is off the ventilator but on one point oxigen and taking liquid food by tube.
I do not know what to do now. If any one can guide me where I should go and what to do. I have spent lot of money in hospitals, Presently, under nursing care at home.
y.p.batra
April 14, 2018 - 8:51am9818671266
This Comment
You can ask for help with your church for prayers.
Check with other doctors in the area, utilize your friends and family.
Use Google to find answers, it works.
Be patient and trust in God.
June 8, 2018 - 5:36pmThis Comment
My little brother suffers from seizures. He also suffers from drug abuse. On Wednesday, April 4 he was with some people and suffered a seizure. It is unclear what happened after that or how long he was without oxygen. It took medics 25 minutes to get a heartbeat back. It is now day 4 in the icu. On day two the hospital doctors wanted us to pull the oxygen and fluids or introduce morphine in order to stop his heart so they could harvest organs. We refused and since then he has been taken off the ventilator And Is breathing well on his own. The neurologist gives him a 0% chance of recovery, but with the fact of how long he was without oxygen being unknown, I don’t buy their prognosis...not this early! He is moving at times which they dismiss as natural reactions but there are times when we talk or touch him that his breathing and heart rate goes up. He lost pupil dilation as the swelling increased but we are past the threshold and waiting for improvement. Reading your stories gives me hope and please feel free to share any experiences or input with me!
April 8, 2018 - 10:57amThis Comment
I am going thru a similar situation With my son it’s the hardest thing iv ever been thru in my life I feel your pain u take day by day and dr r so cruel when it comes to brain injury because I truly don’t think they know about it so they just take the easy way out I don’t listen to nothing they have to say there here there breathing and alive the brain is very amazing thing my son is still not responsive But now does move his head looks around moves his legs on command sometimes and the dr we’ll say is it consistent But it’s more then what he did before one wonderful dr told me look back we’re i was at day one and look now time and the best medicine is love so take day by day it’s a long bumpie road keep your faith and never give up hope and trust in or lord
May 8, 2018 - 7:56pmThis Comment
on the evening of 2/21/18 my brother overdosed. He was discovered the next morning unconscious. The doctors said he had an anoxic brain injury and multi-organ failure. He also developed pneumonia. His kidneys, lungs, liver and brain were failing. They also said his right sight would be paralyzed. He was on life support, 3 medical teams suggested we remove life support. We saw signs, as you did, reactions to music, names, eyebrows moving, etc. The doctors insisted these movements were not purposeful and he would not recover. They said, he would never be the same and he would live in a facility on a ventilator, feeding tube and recv kidney dialysis for most if not all of his life. He has recovered. He is now in a brain injury facility. he is not on a feeding tube, he is not on a ventilator, he is not receiving dialysis. He is breathing, eating and talking on his own. Oh and his right side is not paralyzed. They now expect him to come home May 1st! Please have faith, God is amazing! Thank God we refused to listen to the doctors. They admit, they do not have the data and I think that's because they encourage too many families to remove life support.
April 12, 2018 - 8:54amThis Comment
My son is 34 years and also had a drug overdose on dec 7 2017 . My father went to his house and found him on the floor unconscious called the ambulance which toook about 3 1/2 min to get there when they got there he had a slight pause thru the era was put on life support. Dr. Also told us to prepare for the worst We don’t know how long his brain is without oxygen to talk with the family about letting him go he had liver failure kidney failure And didn’t know about his heart . A few hours later the dr. Came to talk to us and said I’m sorry maybe I spoke to soon his mri came back as good as my brain and scan came back dull but he’s highly sedated So even thou they were dull it was good started dialysis but nothing positive was happening with the brain He was breathing over the vent ween him off and pulled it and had to vent him again did a Brock and he was filled with plugs so had to trach and g tube we left ther dec 27 to acute hospital and recovered his kidneys and liver and heart is very strong still nothing going on with the brain then transferred to a nursing rehab to get aspirated pneumonia in 3 days now at the hospital for a 11 days decided to take home Were the dr when got him home gave me a prescriptions for him and he didn’t give me the fentnal patch to treat his withdrawals said he don’t need it he won’t have none he was wrong back to the hospital to find out he was having withdrawals and he had a infection back to the wonderful acute hospital that had to fight to get him there a place that cares the wonderful dr that cares put him on some brain stimulation Meds we r getting we’re when u call his name he looks at u loves to listen to music smiles and laughs when something is funny will follow command something but nothing consistent now at a another rehab and every afternoon his eyes look goofy and he starts shaking and sweating and getting very tight and finding this web site I’m hearing about storming and have no clue what it is can anyone give me advice all your stories have touched my heart I feel your pain and gave me a happy heart to see there is hope I will never give up on my son I pray everyday and well never take things in life for granted and never stress about the small things life can change in a blind of a eye
May 3, 2018 - 8:27amThis Comment
Please read this article to see if he has these symptoms of sympathetic storming. We had to point it out to the doctors in my sons case and the. they finally got on board and started to treat him.
https://www.rainbowrehab.com/weathering-the-storm-storming/
May 4, 2018 - 5:10amThis Comment
Thank you so much for responding.They have upped his seroquel and muscle relaxer now sleeping all day yesterday. And all night .How do u ever get the brain to come to awareness if u have to keep sedating it’s like a double edge sword. He has never came conscious and is not aware responds to light will look at u when u call his name more focused since the brain stimulation meds and now this happen . I’m beside myself
May 5, 2018 - 7:03amThis Comment
3 weeks ago today my son who will be 34 the 26th of this month hung himself his girlfriend found him cut him down and started cor when paramedics got there he was not breathing and had no pulse they used the paddles and got his heart going he is still in a coma and no response he was moved to an acute long term cafe facility on Thursday he does most of the breathing on his own the vent mainly just does pressure I will not give up hope
October 16, 2017 - 7:00pmThis Comment
My son never woke up he passed December 20th at 8.30 pm
July 25, 2018 - 11:26amThis Comment