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Living with an ankle fusion and subtalar fusion--Any advice?

By March 30, 2010 - 9:51pm
 
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In January of 2009, I fell from a ladder and suffered a catastrophic open-bone fracture of my talus. Not only was the talus shattered, but I immediately developed a serious infection and subsequent deep wound. 9 surgeries, 8 months of IV antibiotics, 9 months on a VAC device, and 15 months of walking in a boot, later . . . I am now looking at life following a complete ankle and subtalar fusion (no part of my ankle moves--except my toes). I am overjoyed that my fusion surgery was successful and am looking forward to learning how to walk again! I was just given the go-ahead from my doctor to begin using MBT shoes and to start physical therapy. I am just wondering if others have walked this road before and have any advice or insight. Thanks so much. Anneh8sldrs (Anne hates ladders)

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Anonymous (reply to Anonymous)

Sorry to hear this, I am 29 yrs old and in excellent physical shape (was I guess haha) I had an ankle fusion in October of 2015 due to an on duty related motorcycle accident. My Dr said he never saw anyone's bones fuse together so fast after the surgery and told me I should be healed up and ready to walk and even run quickly. It is June 2016 now and I can barely walk still because of the pain. I have had way to many injections in my ankle for pain relief and they will not give me anymore this year!! I am on tons of meds that do not help one bit, so I usually don't take them because I don't like to be on pill cocktails around my two sons. I am in the process of trying to get my work comp insurance to pay for an IDEO brace (which I heard works miracles!) but they are giving me the run around. I can't tell you how many times I have thought about chopping my own foot off due to the pain. It is constant and I feel like it will never go away. Mornings are the worst and I dread waking up in the am because I know eventually I will have to walk on it.
I would never ever recommend getting an ankle fusion!
Good luck to all

June 19, 2016 - 7:54pm
EmpowHER Guest
Anonymous (reply to Anonymous)

What happened to your ankle before you had your ankle fused? I have been thinking of having a fusion for over 30 years. i had a failed osteotomy, and now they say they want to fuse it. But, if it will hurt more - then I don't want to do it.

July 5, 2016 - 9:00am
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Anonymous (reply to Anonymous)

HI, I had my fusion done on the 2\12/15 was 6 weeks in a cast then 6 more weeks in a boot, using both crutches. When I went back for my 3 month check up, I'd expected to come out of the boot and start physio. I'm still in alot of pain and can't walk unaided in the boot for long without severe pain in my Heel,(strange considering I've had pain in my ankle for 14 years not my heal), but the ankle /foot does still swell and is painful after walking for 10mins. My Dr told me I would have to spend another 12 weeks in the boot, ie: 6 weeks weaning off the crutches and 6 weeks weaning off the boot. I have to question this process as my ankle is healing as expected, so I don't quite understand being in a boot for nearly 6 months. How long were you told you would have to wear a boot. I had my op in Ireland, where did you get yours.

February 27, 2016 - 5:55am
(reply to Anonymous)

Hey,
I had my fusion done on the 16th of December in St James, Dublin. Similar situation to you in that I went for my 3 month review expecting the boot to come off and was told to keep it on for another 3 months due to pain. I can walk fine for short periods but if I'm on it too long it starts to get sore. Like you, I wasn't expecting to still be in a boot.
Surgery went well, almost no swelling afterwards. Aircast boot from the beginning. Complete bed rest with the ankle up high for 7 weeks (long weeks) Couch for another 5 weeks then began to weight bear while still in an aircast boot.
Let me know if you have any questions. Hope you're not letting it get to you too much. Fight, don't let it win is how I am trying to take it now, not easy.

April 12, 2016 - 2:36am
EmpowHER Guest
Anonymous (reply to Anonymous)

Hi i had a 2nd ankle fusion on the 26/11/2015 exactly 1 year from the original op I got my cast off on Thursday the 18/02/2016 I was told the ankle had healed well I also had a bone graft from doner as the last time they used bone from my knee but they needed more . On Thursday I met surgeon and he said everything was good and my ankle had heeled well he did say my foot position was that my toes were further forward meaning I would find wearing a low heel more comfortable on Thursday I felt great I thought after 3 yrs of pain and 5 operations I had finally got the result I wanted but on Friday omg the pain was unbelievable I am now 3 days out of cast and I'm struggling I had to take oramorph the other night, I just don't know if this is normal I mean if everything has healed well according to the surgeon is this something I will just have to learn to live with and control I don't really want to take painkillers all the time

February 22, 2016 - 4:22pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I had the same situation with both the first fusion two years ago and the second, subtalar fusion last year. When the doc told me to put the boot on after the last cast came off and told me to walk, I was in pain. So he told me to take it easy and use the crutches as needed until I could go without them. That was much easier for me and I healed fine. But, my next surgery this summer is to have all the screws pulled out because one of them I can feel right near my heal and it hurts. Doc said it was better to take them all out than just one because they all need to come out if I ever want an ankle replacement down the line.

February 4, 2016 - 8:13am
EmpowHER Guest
Anonymous (reply to Anonymous)

I had my 3rd surgery February 2015. I had no weight barring for 6 weeks. My foot did not hurt in the boot when I started using it

February 3, 2016 - 11:15pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Hi I had my ankle fused 2 years ago. When I had the cast off and went in the boot I was not allowed to put full weight on it for another 3-4?weeks. It was meant to be gradual as it would be very painful. From memory they told me only 30% weight once in the boot.

February 3, 2016 - 10:53am
EmpowHER Guest
Anonymous

I had my ankle fused in 2012, but the doctor didn't fuse the subtablar (?) for some unknown reason and so I am in pain constantly. I am getting ready to have the subtablar done in February, 2015. I hope this takes out my pain. My fusion went great, so I hope this one goes well aslo. My right foot has plates, screws and staples in it from an accident.

December 10, 2015 - 8:57am
EmpowHER Guest
Anonymous (reply to Anonymous)

Hi. Wondering how you are doing after you subtalar fusion. I am set to have ankle and subtalar fused at the same time. Wondering what the outcome is like. Mobility, walking, stability etc.

February 28, 2016 - 10:56am
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