I think I may have Autoimmune Progesterone-induced Dermatitis, however it seems from posts online that many women experience trouble getting this conditioned tested and diagnosed, mainly because medical professionals do not know about it. How can I bring it to the attention of my GP, or would I be best to get a referral to a dermatologist? What should I say if the dermatologist has no experience with it? How can I best make them take me seriously and not just class it as a)atopic dermatitis b)irritant contact dermatitis etc. What are the possible treatments? As an infant and child I had quite severe atopic dermatitis or eczema of the knees and elbows which became more manageable as I grew up; topical steroids, emollients, baths, gloves to physically restrain me from scratching, allegen scratch tests, substance eliminating diets and for sometime between grades 3-5 morning visits before school for uv light therapy. While never completely gone from my life, it seemed to go into a 'remission', until I was a teenager and contracted hand dermatitis with intermittent flare-ups of old 'trouble' spots. For years I have struggled with embarrassment, anxiety and at some points depression. I noticed a connection between the 'flare' times and my period. I mentioned this to my GP. He didn't consider it to be relevant. Recently I came across a condition known as Autoimmune Progesterone Dermatitis, a milder form of Autoimmune Progesterone Anaphalaxis as I google searched for hormone-induced eczema. But sufferers say it is hard to find a doctor who will believe such a condition exists, or even how to go about testing or treating it. Women can leave a doctors office bewildered, with a referral that may or may not lead to someone else who is willing to accept and treat the condition. How can I get a scratch test for this? Why isn't is more advertised? Why isn't it more well known and researched? I don't think it is as rare as GPs may think. Of the dermatitis cases out there, how many with this chronic condition are women, and for how many of these women can better treatment be provided by identifying hormones as a trigger? Similar to if you identify a food allergen as a trigger. By simply connecting the monthly cycle with the reason for painful burning lips, cracked hands etc., a much better quality of care and life can be had. How do I advocate for it? How do I increase awareness and get information to help myself, and for others out there going through the cycle of unsightly, painful cracking skin again and again month after month for years on end. Help us find a way to better detect and manage it. The resources are there. The research and willingness is not.
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