Hello. My name is Marilyn and I have sarcoidosis. Sarcoidosis is an inflammatory disease that affects any bodily organ. Specifically it almost always starts in the lungs. February of 07 I went in for a 6-week check-up following knee surgery. My doctor advised me that he wanted to do a ct scan because I was only 30 at the time and has had 4 surgeries to have tumors removed. Too young to be experiencing the problems that I was experiencing. Anyway I goes to get the ct done. Two hrs. later I gets to my surgical doctor for my check-up. He gets my test results back and what do you know, I have sarcoidosis. I have never heard of this disease. So he refers me to a pulmonary disease specialist asap. Two days later I'm getting all sorts of chest x-rays done, breathing tests, blood tests, etc...
There is no cure for this potentially fatal disease only treatments and hope. My disease has spreaded to other parts of my body. Noone has informed me of this disease, so I am doing everything in my power to help inform as many people as I can. There are only 2 tests that can detect sarcoidosis. A chest x-ray and ct scan. Please get tested! This is a serious disease which only gets worse without treatment. The disease has been known to burn itself out and go away with little to no treatment. But for a serious case like mine and Mr. Mac, a life-time of treatment will be critical to living.