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Home > What percentage of people who have Antiphospholipid Antibody Syndrome (aka Hughe's Syndrome) do NOT have Lupus?

What percentage of people who have Antiphospholipid Antibody Syndrome (aka Hughe's Syndrome) do NOT have Lupus?

By whatsnext
Created 03/25/2011 - 16:37

I see information on EmpowHer about APLS only as it relates to Lupus. However, I've was diagnosed with, and have been treated for APLS for more than 10 years and I don't have Lupus. Neither does my hematologist, who is probably the only practicing physician with APLS.
I take high-dose Coumadin and have been relatively symptom-free, with occasional flares of inflammation, for the past 10 years. We keep my INR between 3 and 3.5 and I pretty much feel absolutely fine: no bruising, no bleeds, etc.
I am curious to know what percentage of APLS patients I fall in.
Thank you,

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