Published on EmpowHER - Women's Health Online (https://www.empowher.com)

Home > I've just been diagnosed with Erdheim-Chester disease which is extremely rare.

I've just been diagnosed with Erdheim-Chester disease which is extremely rare.

By Anonymous
Created 10/27/2011 - 06:55

My own Dr. hadn't heard of it. I'm going to a rheumatologist next. Has anyone had this disease and what can I expect. What is the diagnosis? I'm 70 years old and in relatively good health. Please help? Is there a group of people with this same disease I can get in touch with. Thanks so much.

Copyright © 2024 HW, LLC d/b/a EmpowHER Media unless otherwise noted. EmpowHER does not provide medical advice, diagnosis, or treatment.
Source URL (retrieved on 04/26/2024 - 06:51): https://www.empowher.com/community/ask/ive-just-been-diagnosed-erdheim-chester-disease-which-extremely-rare