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Pain is a sensation that hurts. It may cause discomfort, distress or agony. It may be steady or throbbing. It may be stabbing, aching, or pinching. However you feel pain, only you can describe it or define it. Because pain is so individual, your pain cannot be "checked out" by anyone else.
Pain may be acute or chronic. Acute pain is severe and lasts a relatively short time. It is usually a signal that body tissue is being injured in some way, and the pain generally disappears when the injury heals. Chronic pain may range from mild to severe, and it is present to some degree for long periods of time.
Cancer patients may have pain for a variety of reasons. It may be due to the effects of the cancer itself, or it could result from treatment methods. For example, after surgery a person feels pain as a result of the operation itself. Or the pain could be unrelated to the cancer-a muscle sprain, a toothache, or a headache.
Remember that not all people with cancer have pain. And those who do are not in pain all the time.
Cancer pain may depend on the type of cancer, the stage (extent) of the disease, and your pain threshold (or tolerance for pain). Cancer pain that lasts a few days or longer may result from:
Whatever the cause, pain can be relieved.
The best way to manage pain is to treat its cause. Whenever possible, the cause of the pain is treated by removing the tumor or decreasing its size. To do this, your doctor may recommend surgery, radiation therapy, or chemotherapy. When none of these procedures can be done, or when the cause of the pain is not known, pain-relief methods are used.
This booklet describes many methods for controlling pain. They include pain medicines, operations on nerves, nerve blocks, physical therapy , and techniques such as relaxation, distraction , and imagery . Only you and your doctor and nurse-who know where your pain is, how bad it is, the kind of cancer you have, and your general health-can decide which methods might be best for you.
If you are feeling pain, you need to be able to describe it to those who are trained to help you. Some people find pain very hard to explain. Try to use words that will help others understand what you are feeling. Your doctor and others who are caring for you need to know:
Pain has different effects on different people. Be sure that those who are caring for you know about the effects.
Don't hesitate to talk about your pain to those who can help you. You have a right to the best pain control you can get. Relieving your pain means you can continue to do the everyday things that are important to you. Remember, only you know what you are feeling.
Symptoms accompanying your pain : nausea, headache, dizziness, weakness, drowsiness, constipation, diarrhea, perspiration
Ability to sleep : good, fitful, can't sleep
Desire to eat : good, some, little, can't eat
Emotional effects : anger, depression, crying, mood swings, irritability, suicidal feelings
Lifestyle changes : work, recreation, interpersonal relationships, ability to get around, self-care activities
Understanding how bad your pain is helps your doctor decide how to treat it. You can rate how much pain you are feeling by using a pain scale like the one below. Try to assign a number from 0 to 5 to your pain level. If you have no pain, use a 0. A 5 means the pain is as bad as it can be. As the numbers get larger, they stand for pain that is gradually getting worse.
You may wish to make up your own pain scale using numbers from 0 to 10 or even 0 to 100. Be sure to let others know what pain scale you are using: for example, "My pain is a 7 on a scale of 0 to 10."
You can use a rating scale to answer:
You may find it helpful to keep a record or a diary about your pain and what you try for pain relief. The record helps you and those who are caring for you understand more about your pain, the effects it has on you, and what works best to ease your pain. Items that should be included are:
No, but these feelings can make the pain seem worse. People often have an emotional reaction to pain. You may feel worried, depressed, or easily discouraged when you are in pain. Some people feel hopeless or helpless. Others feel alone or embarrassed, inadequate or angry, frightened or frantic.
People with cancer have many reasons for feeling anxious or depressed even when they are not in pain. Try to talk about your feelings with your doctors, nurses, family members, friends, a member of the clergy, or other cancer patients. Talking with family members is often helpful, even though this might be hard for you to do at first.
In some communities, cancer patients meet informally to talk about their feelings and share how they have coped with this disease. Just understanding that others feel the same way as you do might help you deal with having cancer. For information about support services in your area contact your local Unit of the American Cancer Society, the Visiting Nurses Association, the Cancer Information Service at 1-800 4 CANCER (1-800422-6237), or someone from a hospice, if one is located in your area.
If you feel that these informal ways to lessen your anxiety or depression are not helpful, you may wish to talk with a counselor, a mental health professional who is skilled at dealing with such problems. Your doctor or nurse may be able to help you find a counselor who is specially trained to help people with chronic illnesses. The social services department at your local hospital is another source of information about people who can help you deal with anxiety and depression.
Another option is to ask your doctor about medication. Sometimes, medicine such as antidepressants or tranquilizers can be helpful. Some of these medicines relieve pain in addition to their antidepressant effects.
Fatigue can make it harder for you to deal with pain. When you are tired, you may not be able to cope with the pain as well as when you are rested. Many people notice that pain seems to get worse as they get tired. Lack of sleep can increase your pain. Be sure to tell your doctor or nurse if you have not been sleeping well because of pain or worry.
If you have had an arm or leg removed by surgery, you may still feel pain or other unpleasant sensations as if they were coming from the absent limb. Doctors are not sure why it occurs, but phantom limb pain is real; it is not imaginary. This also can occur if you have had a breast removed-you may have a sensation of pain in the missing breast.
No single pain-relief method controls phantom limb pain in all patients all the time. Many methods have been used to treat this type of pain, including pain medicine, physical therapy, and nerve stimulation. If you are having phantom pain, ask your doctor, nurse, or pharmacist about how you might relieve it.
Source:
Adapted from National Cancer Institute, 2/00
Last reviewed February 2000 by EBSCO Publishing Editorial Staff
Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.
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