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Invisible Chronic Illness Awareness Week Was September 10-16, 2012

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September 10 to 16, 2012 was Invisible Chronic Illness Awareness Week Hemera/Thinkstock

Retrieved Sept. 20, 2012.

Chronically Ill Unite to Spread Awareness of Invisible Illness. Huffingtonpost.com. Retrieved Sept. 20, 2012.

Join Me Friday at CNN Health Chat -- Here is Why! Invisibleillnessweek.com. Retrieved Sept. 20, 2012.

Visit Jody's website and blog at http://www.ncubator.ca and http://ncubator.ca/blogger

Reviewed September 21, 2012
by MIchele Blacksberg RN

Add a Comment4 Comments

EmpowHER Guest

Thanks for the advise Jody, I did both cry and smiled in the end. I was wondering if you still check your editor@ncubator.ca it has been a while since you posted.
I too have to write things down. I was recently given a blank paged A5 hard cover book, in which I'm intending to use as my new memory base, considering I can play a fair game of Uno with myself. :( They really are rather handy. I recommend it to others dealing with memory difficulties or even loneliness in a matter of fact. A hard cover is also good in any situation of sitting or lying down without the need of something to lean on to write neatly.
Acquiring a pen from across the room is the difficult part now......

I am wonding about ways to celebrate this glorious new week.


September 29, 2012 - 7:54am
HERWriter (reply to Anonymous)


Sounds like you're finding some ways of filling your time and making things work for you. Well, except for that pen ... :)

I hope you have a good week.


September 29, 2012 - 4:52pm
EmpowHER Guest

I really wish I had found this out earlier. I don't know whether to smile because something like this exists for us or cry because I have to wait a year in bed to actually celebrate this to a true potential.
(and because I'm still young and seem to be the first to comment aka WOOOOO I'm FIRST to comment :) )


September 29, 2012 - 3:37am
HERWriter (reply to Anonymous)

I know what you mean, Emily. I wish I'd realized it earlier too. That went into my deciding to write about it even though I had missed it by a week. 

I thought it might help with the whole making the invisible visible thing, if more people knew about it, and might maybe search for it this time next year. And maybe my CFS brain won't prevent me from remembering next year and I can write about it again. Nah, I won't count on being able to remember. I'll write it down like I have to do with most things.

Hang in there Emily. You might well cry because of the long wait in between events for people with CFS. But smile too, because some things are starting to exist for us in very recent years. And more will come. 

Congrats on being the first to post a comment. :)


September 29, 2012 - 7:24am
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We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.