It is now 3am as opposed to the traditional 1am that I am up on the computer and I only woke up once…I’m making an improvement! Tonight I did add in one of the new medications from Scottsdale Healthcare called Zanaflex.
This med is supposed to act as a muscle relaxant. Who knows, maybe this tricked my mind at least for a couple of extra hours from the pain. Actually, yesterday I did sleep in until 10am. I was up all night, but my body actually felt the need to rest during the day. I spent most of the day in my pjs cleaning, organizing, catching up on phone calls and paperwork. Kelly and I went for a walk tonight for about an hour. The big difference was that we added in some hills. I didn’t take a Dilaudid prior to the walk, so by the time I got home my back and stomach were in pain. My ribs are still hurting. On the other hand, I was pleasantly surprised at how much energy I had walking up those hills! Back just a couple of weeks ago I had a very difficult time walking up just one flight of stairs because of the Pulmonary Embolism (at least that’s what I am attributing it to).
Today was day 5 of being home and I was starting to get a little cabin fever. I am still waiting on next steps on the job front and feel like we should be moving much faster on killing this cancer. Realistically, I know we are doing everything as fast as we can, but it doesn’t seem good enough.
So the other night I was talking with Wes and decided that we should take the New Zealand trip sooner rather than later. I am not sure what the cards have in store for me over the next 5 months or so, but it is more feasible to guess where I’ll be in the next couple of months. I have caregivers booked through the beginning of July, so I figure this maybe the best time to go. Theoretically, the Chemo date around this time is June 24 and the first week ends on July 1. We could schedule something in the 2nd and 3rd week of this time. I am just so afraid that if I wait too long than I may never get the chance to go. It’s not going to do me any good just sitting around here waiting; especially when I feel halfway decent.
My mind still feels foggy a good portion of the time from the pain meds and I can’t drive, which limits what I can do on a day to day basis at home. However; I can only organize, clean, research, play with the cats, visit with friends, and try to plant flowers so many days before I will drive myself crazy.