A chronic condition is a problem that lasts for a long time or one that will never go away, such as Parkinson’s disease , AIDS , cancer , or Alzheimer’s disease . With the growing aging population, many more people will be touched by chronic disease conditions. Many more will need assistance with routine aspects of everyday life.
The responsibilities of caregiving, added to the routine pressures of maintaining a family and professional life, can naturally lead to stress. Stress, in turn, creates a ripple effect on the health and well-being of not only the caregiver, but everyone from family members to friends and co-workers.
Living with a chronic illness—and caring for a person with a chronic illness—can lead to physical and emotional stress. The symptoms of this stress may look similar in both the person dealing with the condition and the caregiver. The symptoms include:
For the person with the chronic condition, the level and type of stress may vary depending on the specific illness and its prognosis. Common causes of physical and emotional stress include:
For caregivers who offer a wide range of help, stressors also depend on the intensity of their involvement and their relationship to the person in need. These stressors often include:
In fact, according to the Alzheimer’s Association, many caregivers say they experience stress and feel depressed. This leads some doctors to refer to caregivers as "hidden patients."
Because of the levels and types of stress involved, the impact of chronic illness can extend far beyond the sufferers and their caregivers. Nearly always, it affects the household of the person with the chronic condition. And as those household members are affected, the people who love, care for, and work with them can experience effects as well. A study of grown children with chronically ill parents revealed that even non-caregiver children showed an increased risk of depression.
In every chronic condition, strong support systems benefit everyone. A study of AIDS caregivers, for example, connected strong social support with better coping skills. Researchers are looking into the coping mechanisms that caregivers use and searching for better ways to support caregivers.
While the caregiver typically serves as a primary support system for the chronically ill person, friends and family members can also play important roles. This can be children taking on more responsibilities or friends ensuring that caregivers take time off to relax. These steps help lower the stress level.
Because of the relentless demands associated with chronic illness, understanding positive methods of coping can greatly benefit everyone affected by the condition. Helpful coping strategies include:
RESOURCES:
Children of Aging Parents
http://www.caps4caregivers.org/
Family Caregiver Alliance
http://www.caregiver.org/
CANADIAN RESOURCES:
Alzheimer Society
http://www.alzheimer.ca/
Canadian Caregiver Coalition
http://www.ccc-ccan.ca/
References:
Amirkhanyan AA, Wolf DA. Caregiver stress and noncaregiver stress: exploring the pathways of psychiatric morbidity. The Gerontologist 2003;43:817-827.
Bakas T, Burgener SC. Predictors of emotional distress, general health, and caregiving outcomes in family caregivers of stroke survivors. Top Stroke Rehabilitation. 2003;9:34-35.
Caregiver stress. American Academy of Family Physicians. Available at: http://familydoctor.org/x2314.xml . Updated December 2006. Accessed February 1, 2006.
A fact sheet on caregiver stress and elder abuse. National Center on Elder Abuse website. Available at: http://www.ncea.aoa.gov/NCEAroot/Main_Site/pdf/family/fact_sheet.pdf . Accessed June 17, 2008.
McCausland J, Pakenham KI. Investigation of the benefits of HIV/AIDS caregiving and relations among caregiving adjustment, benefit finding, and stress and coping variables. AIDS Care. 2003;15:853-869.
Raina P, O’Donnell M, Schwellnus H, et al. Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatrics. 2004;4:1.
Last reviewed May 2010 by Brian Randall, MD
Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.
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