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Thanks for sharing this information! I just did some research on this topic...and there is not much information out there. How frustrating this must have been for you (above and beyond your daughter being in pain and consistently misdiagnosed).

For other readers who would like to learn more about this condition, one of the only sites I found that discussed this is at the Medical University of South Carolina:
http://www.muschealth.com/bladderhealth/health_info/urethral_diverticulu...

A few points to note from this site:
- "UD is a condition in which a variably sized "pocket" or outpouching forms next to the urethra. Because it most often connects to the urethra, this outpouching repeatedly gets filled with urine during the act of urination thus causing symptoms".
- Some people with UD have no symptoms, other shave extreme pain and discomfort
- "Since many of the symptoms associated with UD are non-specific, patients may often be misdiagnosed and treated for years for a number of unrelated conditions before the diagnosis of UD is made. This may include therapies for interstitial cystitis, recurrent cystitis, vulvodynia, endometriosis, vulvovestibulitis and other conditions."

Thanks, again, for sharing your daughter's story, as I'm sure this will help many women who have been misdiagnosed for years (as even the site mentions!). Laurie, I'm glad your daughter is doing well now!

July 31, 2008 - 1:32pm

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