I was diagnosed with Sjogren's Syndrome in 2008, after a horrendous battle with Endometriosis. My doctor is a top specialist in the field of Endo, and explained to me that people that get Endo to the degree I had it, often have two or three other Auto Immune diseases. I was able to see a rheumatologist, and start Plaquenil. Because the Plaquenil has some effect on the retina, and I was not showing signs of it.. I decided to stop and get back on when I needed it. Big mistake! I have never been able to pass another blood test showing any ANA activity...even though Sjogren's can sometimes go undetected. Now- I have major organ involvement, and I am having to get a malpractice attorney involved to simply get the correct treatment and respect at a world reknowned medical facility. They have me pigeon holed as a Opiate Addict, when I have extremely bad inflammatory arthritis in my feet, knees, back and wrists. It's my belief they don't want to diagnose me as Sjogren's requires many specialists. I took my records to an outside specialist, and she prescribed me the Plaquenil- all be it- a little late. She is also helping me get a lip biopsy as well as an ocular test for validation of the Sjogren's. My advice? Don't ever give up- and don't take disrespect. Be well-
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I was diagnosed with Sjogren's Syndrome in 2008, after a horrendous battle with Endometriosis. My doctor is a top specialist in the field of Endo, and explained to me that people that get Endo to the degree I had it, often have two or three other Auto Immune diseases. I was able to see a rheumatologist, and start Plaquenil. Because the Plaquenil has some effect on the retina, and I was not showing signs of it.. I decided to stop and get back on when I needed it. Big mistake! I have never been able to pass another blood test showing any ANA activity...even though Sjogren's can sometimes go undetected. Now- I have major organ involvement, and I am having to get a malpractice attorney involved to simply get the correct treatment and respect at a world reknowned medical facility. They have me pigeon holed as a Opiate Addict, when I have extremely bad inflammatory arthritis in my feet, knees, back and wrists. It's my belief they don't want to diagnose me as Sjogren's requires many specialists. I took my records to an outside specialist, and she prescribed me the Plaquenil- all be it- a little late. She is also helping me get a lip biopsy as well as an ocular test for validation of the Sjogren's. My advice? Don't ever give up- and don't take disrespect. Be well-
November 29, 2016 - 8:17amThis Comment
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