Hi Tyler, I am glad you don't have diabetes, and you should be too, really you don't want to have any type of diabetes. I'm sorry that you still have no cause for the vulvadynia yet. That is good that you can have intercourse with the lidocaine, however if I were you I would stop having it until you figure out what is going on because it is only going to keep aggravating the situation.
I was not able to have intercourse without significant pain with lidocaine or anything else. The last time I had intercourse I had to take vicodin before and put ice on my vulva after and I was still burning like crazy for hours, lidocaine, vicodin, ice etc. I've tried it all and nothing helps except the low estrogen cream/waterbased that I used 2x per week. I have to not have any type of abrasion to the area and do all the other things that help me: no underwear, wash area with water after urination, drink lots of water, avoid all contact with that area. The base of my vagina is shrinking now I'm in full meno and the tissue is thinner etc.
In addition the doc who has still been treating me who was one of the MANY docs who failed to diagnose my diabetes which nearly killed me and caused serious complications has now written a bunch of nasty stuff about me in my file: sent to me by accident. Saying this is emotionally based because none of the treatments have helped me. I will be making a complaint about him eventually. All I can say is be very careful about your doctors, you never know what they are writing in your file and saying about you to others. I have tried every treatment out there but surgery and stretching/pt and botox. Just the thought of having an injection there makes me wince. I don't ever want to go back to what I was, it was SOOO BAD. All the other treatments are problematic for me, like lyrica, elavil, etc.- even topical elavil gave me side effects. Those drugs make me very dopey and" psychotic" feeling and lyrica didn't help my pain at all, probably partly because what I needed was insulin. I had taken that for chronic pain from injuries before and it wasn't helpful then either. Antihistamines helped but again, very dopey and bad mood effects. Being on insulin has helped the most but of course I need that to stay alive now too.
My guess is there is nerve damage from the diabetes which is also causing the symptoms I still have along with menopause and thinning skin etc. - I have neuropathy which causes pain in my hands and feet and many other bad effects from type 1 even with relatively well controlled bg. I just wonder if surgery to replace the tissue there would help me? I would never try it though because I have heard many horror stories about how women are worse with that. Unfortunately unless I find a man who is ok without intercourse I will end up alone for the rest of my life most likely. It is not worth it to me to be in that kind of pain again- not sure how I lived with that constant burning and pain and everything else. But the insulin and normalized bg has helped me a great deal thank god. So at least I am free from the constant pain etc. I just can't believe what I went through and how many doctors I went to and they all f****** up big time and now one or more for all know is bad mouthing me. I have talked to many other people about what happened to me and to one of my former, now retired doctors, who is now a friend who all told me I should have sued them. I did threaten to sue the hospital where I was treated when my insurance refused to pay for my second stay with a dvt. They had released me from the icu with a dvt and other blood clots, I returned the next day. They ended up absorbing the costs which were $25, 000 for the second stay.
Another thing you need to do is buy your own bg monitor at walmart and test your bg yourself because in the beginning you can have normal fasting bg tests and still have diabetes. I had -3 normal tests in the few years before my dka, one six months before, but when I had severe yeast infections my bg would have been sky high because yeast feeds on sugar. Test your fasting test in the am, eat a meal and test 2 hours later. Normal bg will be 80-90 2 hours after and low 80's fasting. For a glucose tolerance test, do a fasting am test, drink 80g of carbs/ sugar, such as juice, and test every 1/2 hour for 4-5 hours, see how high you go and if you go low later. A lot of people have reactive hypos in the beginning of diabetes. If you go above 200 you have a problem and then you should go to an endo to be evaluated.
Believe me I have tried nearly EVERY FRICKING THING FOR THIS CRAP SITUATION!! lol... including contemplating putting vinegar and listerine on my vjj because someone else said that helped them when what I had was type 1 diabetes causing most of my symptoms which were not only the vulvodynia symptoms.. unbelievable. I remember one night the itching was sooo bad I couldn't bare it and I put anti-fungal foot cream on my vagina which barely helped. I was in bed for 3 days with a severe yeast infection with a rash 3 weeks before dka and ANOTHER gyn failed to do testing on me again, when I called back to say diflucan wasn't helping he told me to go to my other doctor!! I didn't do that because I was so busy and sick and then ended up in the hospital, after my gp who I finally went to failed to hospitalize me immediately. He has admitted to one of my relatives who still goes to him that he made a big mistake.
You have to do your own research and not really trust anyone else with your health. Because in the end some of them are smiling to your face while they write a bunch of crap about you in their files and failing to do basic simple tests to see if something systemic is going on. One doctor charged me $350 for a dumb ass dna test for his research which wasn't covered by insurance when what he should have done was do a blood panel on me- I would have been diagnosed 2 years before I ended up in the icu.
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Hi Tyler, I am glad you don't have diabetes, and you should be too, really you don't want to have any type of diabetes. I'm sorry that you still have no cause for the vulvadynia yet. That is good that you can have intercourse with the lidocaine, however if I were you I would stop having it until you figure out what is going on because it is only going to keep aggravating the situation.
I was not able to have intercourse without significant pain with lidocaine or anything else. The last time I had intercourse I had to take vicodin before and put ice on my vulva after and I was still burning like crazy for hours, lidocaine, vicodin, ice etc. I've tried it all and nothing helps except the low estrogen cream/waterbased that I used 2x per week. I have to not have any type of abrasion to the area and do all the other things that help me: no underwear, wash area with water after urination, drink lots of water, avoid all contact with that area. The base of my vagina is shrinking now I'm in full meno and the tissue is thinner etc.
In addition the doc who has still been treating me who was one of the MANY docs who failed to diagnose my diabetes which nearly killed me and caused serious complications has now written a bunch of nasty stuff about me in my file: sent to me by accident. Saying this is emotionally based because none of the treatments have helped me. I will be making a complaint about him eventually. All I can say is be very careful about your doctors, you never know what they are writing in your file and saying about you to others. I have tried every treatment out there but surgery and stretching/pt and botox. Just the thought of having an injection there makes me wince. I don't ever want to go back to what I was, it was SOOO BAD. All the other treatments are problematic for me, like lyrica, elavil, etc.- even topical elavil gave me side effects. Those drugs make me very dopey and" psychotic" feeling and lyrica didn't help my pain at all, probably partly because what I needed was insulin. I had taken that for chronic pain from injuries before and it wasn't helpful then either. Antihistamines helped but again, very dopey and bad mood effects. Being on insulin has helped the most but of course I need that to stay alive now too.
My guess is there is nerve damage from the diabetes which is also causing the symptoms I still have along with menopause and thinning skin etc. - I have neuropathy which causes pain in my hands and feet and many other bad effects from type 1 even with relatively well controlled bg. I just wonder if surgery to replace the tissue there would help me? I would never try it though because I have heard many horror stories about how women are worse with that. Unfortunately unless I find a man who is ok without intercourse I will end up alone for the rest of my life most likely. It is not worth it to me to be in that kind of pain again- not sure how I lived with that constant burning and pain and everything else. But the insulin and normalized bg has helped me a great deal thank god. So at least I am free from the constant pain etc. I just can't believe what I went through and how many doctors I went to and they all f****** up big time and now one or more for all know is bad mouthing me. I have talked to many other people about what happened to me and to one of my former, now retired doctors, who is now a friend who all told me I should have sued them. I did threaten to sue the hospital where I was treated when my insurance refused to pay for my second stay with a dvt. They had released me from the icu with a dvt and other blood clots, I returned the next day. They ended up absorbing the costs which were $25, 000 for the second stay.
Another thing you need to do is buy your own bg monitor at walmart and test your bg yourself because in the beginning you can have normal fasting bg tests and still have diabetes. I had -3 normal tests in the few years before my dka, one six months before, but when I had severe yeast infections my bg would have been sky high because yeast feeds on sugar. Test your fasting test in the am, eat a meal and test 2 hours later. Normal bg will be 80-90 2 hours after and low 80's fasting. For a glucose tolerance test, do a fasting am test, drink 80g of carbs/ sugar, such as juice, and test every 1/2 hour for 4-5 hours, see how high you go and if you go low later. A lot of people have reactive hypos in the beginning of diabetes. If you go above 200 you have a problem and then you should go to an endo to be evaluated.
Believe me I have tried nearly EVERY FRICKING THING FOR THIS CRAP SITUATION!! lol... including contemplating putting vinegar and listerine on my vjj because someone else said that helped them when what I had was type 1 diabetes causing most of my symptoms which were not only the vulvodynia symptoms.. unbelievable. I remember one night the itching was sooo bad I couldn't bare it and I put anti-fungal foot cream on my vagina which barely helped. I was in bed for 3 days with a severe yeast infection with a rash 3 weeks before dka and ANOTHER gyn failed to do testing on me again, when I called back to say diflucan wasn't helping he told me to go to my other doctor!! I didn't do that because I was so busy and sick and then ended up in the hospital, after my gp who I finally went to failed to hospitalize me immediately. He has admitted to one of my relatives who still goes to him that he made a big mistake.
You have to do your own research and not really trust anyone else with your health. Because in the end some of them are smiling to your face while they write a bunch of crap about you in their files and failing to do basic simple tests to see if something systemic is going on. One doctor charged me $350 for a dumb ass dna test for his research which wasn't covered by insurance when what he should have done was do a blood panel on me- I would have been diagnosed 2 years before I ended up in the icu.
May 6, 2015 - 2:59amThis Comment
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